Narcolepsy Network is a non-profit organization dedicated to individuals with narcolepsy and related sleep disorders. Our mission is to provide services to educate, advocate, support and improve awareness of this neurological sleep disorder.

Latest News & Events

We are running the 2018 TCS New York City Marathon

Hello friends, We’re excited to announce that Narcolepsy Network has been selected as an Official Charity Partner for the 2018 TCS New York City Marathon. Narcolepsy Network […]

Patients Are Needed for Clinical Trial

Flamel, part of the Avadel Pharmaceuticals, is looking for subjects to participate in their clinical trial – REST-ON; evaluating their once nightly sodium oxybate (FT218) for the treatment of Excessive Daytime […]

Be an Advocate for Rare Disease Week

Every year, patients and caregivers from the rare disease community gather in Washington, DC to learn how to work effectively with Congress and federal agencies. Last year, […]

Proposed Changes to NN’s Bylaws

The Board of Trustees has proposed several amendments to the Bylaws of Narcolepsy Network. We would like to share these proposed amendments, so that you understand why […]

Let Your Voice Be Heard About Your Healthcare

As Congress debates major healthcare legislation, this is an important opportunity for people with narcolepsy (PWNs) to make our voices heard. Many of us would be struggling […]

Other News & Events

What is Narcolepsy?

Narcolepsy is a medical disorder that impacts 1 in approximately 2,000 people in the United States of America. The disease is a sleep disorder, involving irregular patterns in Rapid Eye Movement (REM) Sleep and significant disruptions of the normal sleep/wake cycle. While the cause of narcolepsy is not completely understood, current research points to a combination of genetic and environmental factors that influence the immune system. Read More

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