Narcolepsy Network is a non-profit organization dedicated to individuals with narcolepsy and related sleep disorders. Our mission is to provide services to educate, advocate, support and improve awareness of this neurological sleep disorder.
Latest News & Events
Harmony Biosciences Announces File Acceptance Of Its New Drug Application For Pitolisant
In early 2018, NN put together a panel of people with narcolepsy (PWNs), doctors, and advocates to petition the FDA to grant fast-track status to new medications. […]
Year in Review
2018 was a busy year! We had the honor of speaking to representatives at the Food and Drug Administration (FDA) to encourage the development of new medications. […]
New Membership Levels and Benefits
We are making some changes to our membership program in 2019, with the introduction of three new levels of membership (including a much-requested family membership). In this […]
FDA Approves Xyrem in Pediatric Patients with Narcolepsy
The US Food and Drug Administration (FDA) approved Xyrem (sodium oxybate) for the treatment of cataplexy and excessive daytime sleepiness (EDS) in pediatric patients ages 7-17 with narcolepsy. Read […]
New Survey Identifies the Need For Increased Education and Treatment Options for Narcolepsy
Results of a survey of those living with narcolepsy, treating physicians, and the general public, bring attention to the impact of the disorder on daily life. The Know […]
What is Narcolepsy?
Narcolepsy is a medical disorder that impacts 1 in approximately 2,000 people in the United States of America. The disease is a sleep disorder, involving irregular patterns in Rapid Eye Movement (REM) Sleep and significant disruptions of the normal sleep/wake cycle. While the cause of narcolepsy is not completely understood, current research points to a combination of genetic and environmental factors that influence the immune system. Read More
