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One Day Narcolepsy Seminar in NYC

Join us for our first one day narcolepsy seminar in New York City! These seminars will not replace the interactions at the annual conference, but will provide […]

New Survey Highlights the Prevalence of Misinformation and Misperception about Narcolepsy

We still have work to do in order to break down narcolepsy’s stereotypes. We are committed to bringing awareness about this disorder. Here are some of the […]

Celebrating World Narcolepsy Day

Thank you to everyone who sent in a stories for World Narcolepsy Day. We were able to share your stories on social channels all day long! Through […]

Jazz Pharmaceuticals Presents Positive JZP-258 Phase 3 Study Data at World Sleep 2019

Jazz Pharmaceuticals plc announced positive data from the Phase 3 study of its investigational medicine, JZP-258, for the treatment of cataplexy and excessive daytime sleepiness in adults […]

Administration’s Deferred Action Policy

The National MPS Society, California Action Link for Rare Diseases (CAL RARE) and EveryLife Foundation asked patient organizations to sign on to a letter that asked the […]

2019 Conference Schedule Now Available

We will have a jam-packed weekend for PWNs and their supporters at this year’s conference, taking place in Albuquerque, New Mexico on October 25-27. Check out the […]

Celebrate World Narcolepsy Day

Narcolepsy Network Partners with Patient Advocacy Organizations to Celebrate Global Narcolepsy Awareness Day World Narcolepsy Day will Take Place on September 22, 2019 Narcolepsy Network, the leading […]

In Memoriam: Dr. Christian Guilleminault

Dr. Christian Guilleminault passed away on July 9, 2019 from complications due to metastatic prostate cancer. He is survived by his wife and two sons.  Dr. Guilleminault […]

In Memoriam: Dr. Feldman

We are saddened to hear that one of our Medical Advisory Board Members passed away on Friday, June 21. Dr. Neil Turk Feldman passed away after complications […]

Research Study for Adults with Narcolepsy – Share Your Story

People with narcolepsy face challenges and problems every day – symptoms and problems are not always recognized or understood by health care providers or members of the […]

New Study for Children with Narcolepsy

Has your child been diagnosed with narcolepsy or have you taken your child to the doctor where the main reason for the visit was to address the […]

Now Accepting Applications to be a 2019-2020 Youth Ambassador

Narcolepsy Network (NN) is now accepting applications for the Youth Ambassador Program (YA). This is a national program designed to train promising young members of NN to […]

Clinical Trial for the Treatment of Excessive Daytime Sleepiness and Cataplexy

Axsome Therapeutics is pleased to announce a new clinical trial of an investigational oral medication, AXS-12, for the treatment of excessive daytime sleepiness and cataplexy associated with […]

We Are Running the 2019 TCS New York City Marathon

We are excited to announce that Narcolepsy Network will once again be running the TCS New York City Marathon this fall as an Official Charity Partner! Last […]

Narcolepsy Advocates Went to Washington for Rare Disease Week

In year’s past, Narcolepsy Network was able to send our Executive Director or a board member or two to Rare Disease Week on Capitol Hill. This year, […]

New Membership Levels and Benefits

We are making some changes to our membership program in 2019, with the introduction of three new levels of membership (including a much-requested family membership). In this […]

NN Met with FDA Representatives

Several Narcolepsy patient advocates, along with Narcolepsy Network’s President Dr. Mark Patterson and Executive Director Dr. Eveline Honig went to the Food and Drug Administration (FDA) to […]

We Are Running the 2018 TCS New York City Marathon

Hello friends, We’re excited to announce that Narcolepsy Network has been selected as an Official Charity Partner for the 2018 TCS New York City Marathon. Narcolepsy Network […]

Let Your Voice Be Heard About Your Healthcare

As Congress debates major healthcare legislation, this is an important opportunity for people with narcolepsy (PWNs) to make our voices heard. Many of us would be struggling […]

Your Support Group on Meetup

Narcolepsy Network has created a centralized website for narcolepsy support groups on Meetup.com that can be found here. What is Meetup? It is software built specifically to […]

Run for #TeamNarcolepsy

Have you ever wanted to run a marathon? Do you have narcolepsy, or know someone who does? Have you always wanted to do something big to support […]

Participants Are Needed for Clinical Trial

Flamel, part of the Avadel Pharmaceuticals, is looking for subjects to participate in their clinical trial evaluating their once nightly sodium oxybate for the treatment of Excessive […]

Help Researchers Learn More About Narcolepsy

The Nexus Narcolepsy Registry is an effort by the narcolepsy research and advocacy communities in collaboration with Jazz Pharmaceuticals that will collect de-identified data from a large […]

Study on the Mind-Body Approach to Improve Health-Related Quality of Life for PWNs

Narcolepsy Network Medical Advisory Board Member Dr. Jason Ong and his team at the Center for Circadian and Sleep Medicine at Northwestern University Feinberg School of Medicine […]

Narcolepsy Network Signs On To a Letter to Prevent Rare Disease Patients from Deportation

Narcolepsy Network, together with 105 other rare disease patient organizations, signed on to a letter this week asking the Administration to ensure that migrant individuals who participate […]

Harmony Biosciences Announces FDA Approval Of WAKIX (pitolisant)

Harmony Biosciences, LLC (Harmony) announced that the FDA approved WAKIX® (pitolisant) for the treatment of excessive daytime sleepiness (EDS) in adult patients with narcolepsy. WAKIX® is the […]

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