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Protected: September 21, 2024—Join us in Philly

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In Memory of John Ensminger

With a heavy heart, we share with you that John Ensminger, our Treasurer, tragically passed away this past week. John was an integral member of the Narcolepsy […]

Patient Experience & Program Study

What is the Patient Experience & Program Study and why is Narcolepsy Network undertaking this work? The goal of the Patient Experience & Program Study is to […]

Suddenly Sleepy Saturday 2024 Recap

Fabulous year for Suddenly Sleepy Saturday—Thank you! Wow, we had a great turnout this year to celebrate Suddenly Sleepy Saturday on March 9th, the day to promote […]

2024 Call for Narcolepsy Network Board Nominations

Today, I am excited to announce an open call for nominations to the Narcolepsy Network Board of Directors. We’re looking for service-oriented leaders who: Have a desire […]

Narcolepsy Network Board Nomination Form

Thank you for your engagement in putting forward a nominee. We are looking for people who represent the different facets of our community, and those with experience […]

Clinical Trials: How do clinical trial types differ?

Clinical trials are investigational research studies that have various objectives. Our community is benefiting from a great focus on treatment trials that investigate new compounds. The objective […]

Postponed: Behavioral Tools for Hypersomnia webinar

We will explore the valuable ways behavioral tools can help manage your day and your mental health. You will learn the Pomodoro Method, a technique to monitor […]

June 15, 2024—Join us in Charlottesville

Please join us for lunch and an afternoon to connect and learn in Charlottesville. Learn from sleep specialists and advocates, and participate in Roundtable Discussions. For those […]

Patient Journey Scientific Research

Last year, Narcolepsy Network partnered with Axsome Therapeutics on scientific research. KJT Group, an independent research firm, conducted an unbranded study in order to ensure patient privacy. […]