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Research Study for Adults with Narcolepsy – Share Your Story

People with narcolepsy face challenges and problems every day – symptoms and problems are not always recognized or understood by health care providers or members of the […]

New Study for Children with Narcolepsy

Has your child been diagnosed with narcolepsy or have you taken your child to the doctor where the main reason for the visit was to address the […]

Now Accepting Applications to be a 2019-2020 Youth Ambassador

Narcolepsy Network (NN) is now accepting applications for the Youth Ambassador Program (YA). This is a national program designed to train promising young members of NN to […]

Clinical Trial for the Treatment of Excessive Daytime Sleepiness and Cataplexy

Axsome Therapeutics is pleased to announce a new clinical trial of an investigational oral medication, AXS-12, for the treatment of excessive daytime sleepiness and cataplexy associated with […]

We Are Running the 2019 TCS New York City Marathon

We are excited to announce that Narcolepsy Network will once again be running the TCS New York City Marathon this fall as an Official Charity Partner! Last […]

Narcolepsy Advocates Went to Washington for Rare Disease Week

In year’s past, Narcolepsy Network was able to send our Executive Director or a board member or two to Rare Disease Week on Capitol Hill. This year, […]

New Membership Levels and Benefits

We are making some changes to our membership program in 2019, with the introduction of three new levels of membership (including a much-requested family membership). In this […]

NN Met with FDA Representatives

Several Narcolepsy patient advocates, along with Narcolepsy Network’s President Dr. Mark Patterson and Executive Director Dr. Eveline Honig went to the Food and Drug Administration (FDA) to […]

We Are Running the 2018 TCS New York City Marathon

Hello friends, We’re excited to announce that Narcolepsy Network has been selected as an Official Charity Partner for the 2018 TCS New York City Marathon. Narcolepsy Network […]

Let Your Voice Be Heard About Your Healthcare

As Congress debates major healthcare legislation, this is an important opportunity for people with narcolepsy (PWNs) to make our voices heard. Many of us would be struggling […]

Your Support Group on Meetup

Narcolepsy Network has created a centralized website for narcolepsy support groups on Meetup.com that can be found here. What is Meetup? It is software built specifically to […]

Run for #TeamNarcolepsy

Have you ever wanted to run a marathon? Do you have narcolepsy, or know someone who does? Have you always wanted to do something big to support […]

Participants Are Needed for Clinical Trial

Flamel, part of the Avadel Pharmaceuticals, is looking for subjects to participate in their clinical trial evaluating their once nightly sodium oxybate for the treatment of Excessive […]

Help Researchers Learn More About Narcolepsy

The Nexus Narcolepsy Registry is an effort by the narcolepsy research and advocacy communities in collaboration with Jazz Pharmaceuticals that will collect de-identified data from a large […]

PEACE (Pitolisant Expanded Access Clinical Evaluation) Program, an Expanded Access Program, is Now Open

An Expanded Access Program is now open to provide pitolisant* to adult patients with narcolepsy type 1 (with cataplexy) or type 2 (without cataplexy). Expanded access provides […]

New Membership Levels and Benefits

We are making some changes to our membership program in 2019, with the introduction of three new levels of membership (including a much-requested family membership). In this […]

Upcoming Support Group Meetings

Having the support of other people with narcolepsy is an important part of living well with narcolepsy. One of the best ways to get this support is […]

Harmony Biosciences Announces File Acceptance Of Its New Drug Application For Pitolisant

In early 2018, NN put together a panel of people with narcolepsy (PWNs), doctors, and advocates to petition the FDA to grant fast-track status to new medications. […]

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