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NN Met with FDA Representatives

Several Narcolepsy patient advocates, along with Narcolepsy Network’s President Dr. Mark Patterson and Executive Director Dr. Eveline Honig went to the Food and Drug Administration (FDA) to […]

We Are Running the 2018 TCS New York City Marathon

Hello friends, We’re excited to announce that Narcolepsy Network has been selected as an Official Charity Partner for the 2018 TCS New York City Marathon. Narcolepsy Network […]

Let Your Voice Be Heard About Your Healthcare

As Congress debates major healthcare legislation, this is an important opportunity for people with narcolepsy (PWNs) to make our voices heard. Many of us would be struggling […]

Your Support Group on Meetup

Narcolepsy Network has created a centralized website for narcolepsy support groups on Meetup.com that can be found here. What is Meetup? It is software built specifically to […]

Run for #TeamNarcolepsy

Have you ever wanted to run a marathon? Do you have narcolepsy, or know someone who does? Have you always wanted to do something big to support […]

Participants Are Needed for Clinical Trial

Flamel, part of the Avadel Pharmaceuticals, is looking for subjects to participate in their clinical trial evaluating their once nightly sodium oxybate for the treatment of Excessive […]

Help Researchers Learn More About Narcolepsy

The Nexus Narcolepsy Registry is an effort by the narcolepsy research and advocacy communities in collaboration with Jazz Pharmaceuticals that will collect de-identified data from a large […]

Pitolisant Granted Breakthrough Therapy and Fast Track Designations by FDA

There is great news about a possible treatment option for narcolepsy and excessive daytime sleepiness! Harmony Biosciences, LLC, announced that the Food and Drug Administration (FDA) had granted […]

Rare Disease Week 2018

On February 25th, seven Narcolepsy Network advocates and board members joined 750 other advocates in Washington, D.C. to participate in Rare Disease Week. The events, organized by […]

NORD Copay Assistance Program

Since 1987, NORD (National Organization for Rare Diseases), an organization whose mission is to identify, treat, and cure rare diseases through education, advocacy, and patient services has provided assistance […]

Blog: MRI Guidance Shows Promise in Delivering Stem Cell Therapies

This post was shared via medresearch. Working with animals, a team of scientists reports it has delivered stem cells to the brain with unprecedented precision by threading a […]

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