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New Membership Levels and Benefits

We are making some changes to our membership program in 2019, with the introduction of three new levels of membership (including a much-requested family membership). In this […]

NN Met with FDA Representatives

Several Narcolepsy patient advocates, along with Narcolepsy Network’s President Dr. Mark Patterson and Executive Director Dr. Eveline Honig went to the Food and Drug Administration (FDA) to […]

We Are Running the 2018 TCS New York City Marathon

Hello friends, We’re excited to announce that Narcolepsy Network has been selected as an Official Charity Partner for the 2018 TCS New York City Marathon. Narcolepsy Network […]

Let Your Voice Be Heard About Your Healthcare

As Congress debates major healthcare legislation, this is an important opportunity for people with narcolepsy (PWNs) to make our voices heard. Many of us would be struggling […]

Your Support Group on Meetup

Narcolepsy Network has created a centralized website for narcolepsy support groups on Meetup.com that can be found here. What is Meetup? It is software built specifically to […]

Run for #TeamNarcolepsy

Have you ever wanted to run a marathon? Do you have narcolepsy, or know someone who does? Have you always wanted to do something big to support […]

Participants Are Needed for Clinical Trial

Flamel, part of the Avadel Pharmaceuticals, is looking for subjects to participate in their clinical trial evaluating their once nightly sodium oxybate for the treatment of Excessive […]

Help Researchers Learn More About Narcolepsy

The Nexus Narcolepsy Registry is an effort by the narcolepsy research and advocacy communities in collaboration with Jazz Pharmaceuticals that will collect de-identified data from a large […]

FDA Approves Xyrem in Pediatric Patients with Narcolepsy

The US Food and Drug Administration (FDA) approved Xyrem (sodium oxybate) for the treatment of cataplexy and excessive daytime sleepiness (EDS) in pediatric patients ages 7-17 with narcolepsy. Read […]

New Survey Identifies the Need For Increased Education and Treatment Options for Narcolepsy

Results of a survey of those living with narcolepsy, treating physicians, and the general public, bring attention to the impact of the disorder on daily life. The Know […]

Harmony Biosciences Presented Data On Pitolisant

Harmony Biosciences, LLC (Harmony) presented data on its investigational product, pitolisant, which has been studied for the treatment of both excessive daytime sleepiness (EDS) and cataplexy in […]

Research Survey for Parents of Children with Narcolepsy

Has your child been diagnosed with narcolepsy? Or, have you taken your child to the doctor where the main reason for the visit was to address the […]

Meet #TeamNarcolepsy

Narcolepsy Network has been selected as an Official Charity Partner for the 2018 TCS New York City Marathon. We will join more than 350 official charity partners in […]

Pitolisant Granted Breakthrough Therapy and Fast Track Designations by FDA

There is great news about a possible treatment option for narcolepsy and excessive daytime sleepiness! Harmony Biosciences, LLC, announced that the Food and Drug Administration (FDA) had granted […]

Rare Disease Week 2018

On February 25th, seven Narcolepsy Network advocates and board members joined 750 other advocates in Washington, D.C. to participate in Rare Disease Week. The events, organized by […]

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