Disability Resources

• Americans with Disabilities Act (ADA) Homepage
• Education
  • See this example of a letter a doctor can write on your behalf to your employer.
• Employment
• Job Accommodation Network
• National Employment Lawyers Association
• Social Security Disability Programs

Other Sleep Disorder and Rare Disease Organizations

• American Sleep Apnea Association
• Circadian Sleep Disorders Network
• EURODIS (Rare Diseases Europe)
• NORD (National Organization for Rare Disorders)
• Rare Connect (A Partnership of EURODIS and NORD)
• Restless Legs Syndrome/Willis Ekbom Disease Foundation
• RareDiseases.org

Other Sleep Sites

• Harvard University’s “Understanding, Living With, and Treating Narcolepsy” website

Research

• Center for Sleep Research, UCLA
• National Institutes of Health (NIH) National Center on Sleep Disorders Research
• Stanford Center for Narcolepsy

Financial Assistance

• Patient Assistance Programs (PAPs)
  • The Assistance Fund’s Narcolepsy Copay Assistance Program
  • NORD’s Narcolepsy Patient Assistance Programs
• Prescription Discount Programs/Websites
  • GoodRx
  • NeedyMeds
• The EveryLife Foundation for Rare Diseases’ #RAREis Scholarship Fund (closes Apr 28, 2025)

Other Resources

• American Academy of Sleep Medicine
• American Board of Sleep Medicine
• American Sleep and Breathing Academy
• Brain Donation
• Centers for Disease Control and Prevention (CDC) – Sleep and Sleep Disorders
• National Sleep Foundation