What are Clinical Trials or Studies?

Who conducts Clinical Trials or Studies?

How do you participate in Clinical Trials or Studies?

What questions to ask about Clinical Trial or Study participation?

What is the Orphan Drug Act for Rare Disease?

Search for trials and studies: Clinicaltrials.gov

Clinical Trials & Studies in Narcolepsy:

Your participation in research studies helps researchers to better understand Narcolepsy Type 1 & 2, and Idiopathic Hypersomnia and to test investigational drugs.

Clinical trials and studies are sponsored by medical/academic institutions, pharmaceutical and biotech companies. As a patient organization, please note that Narcolepsy Network is not engaged in promoting, recruiting or advising on participation in clinical trials and studies. Rather, Narcolepsy Network shares clinical and trial information in a neutral and balanced manner to honor individual choice. If you have questions, we suggest that you consult your physician.

In order to find out more about each clinical trial or study, click the hyperlinks below.

Pharmaceutical / Biotech Studies and Trials:

NEW: ONSTRIDE-1 Study for individuals with narcolepsy.

NEW: Brilliance Studies for individuals with narcolepsy type 1 or narcolepsy type 2.

Vibrance-3 Study for individuals with Idiopathic Hypersomnia.

The Crystal-1 Study for people living with Narcolepsy (Type 1 & 2) and Idiopathic Hypersomnia.

The KYRA Study, for people living with Narcolepsy Type 2.

The Alba Study for people living with Idiopathic Hypersomnia.

Active Medical / Academic Studies:

Narcolepsy and Pregnancy: Expectations and Experiences of Narcolepsy Symptoms in Pregnancy

Improving Social and Relationship Health for Adolescents with Narcolepsy or Idiopathic Hypersomnia

Narcolepsy and Idiopathic Hypersomnia Study testing the medication clarithromycin for the treatment of Narcolepsy (Types 1 & 2) and IH

Impact of Low Sodium Oxybate on Total Sleep Time in Patients with Idiopathic Hypersomnia

Press Releases:

**UPDATE** (May 10, 2022): All press releases, announcements, and statements from industry partners have been moved to the Industry News page of our website.