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A Mother-Daughter Bond Through Narcolepsy

Narcolepsy Network Board Member, Carol Gilmour, and her daughter, Caroline Arnette, former Narcolepsy Network Lead Youth Ambassador, are on Capitol Hill this week advocating for rare disease […]

January is Mental Wellness Month

What is mental wellness? According to the World Health Organization, mental wellness is “a state of well-being in which the individual realizes his or her own abilities, can cope […]

Clinical Research Matters: Takeaways From World Sleep Congress 2022

by Keith Harper, Board President Last week, Amy Kant, Transition Director, and I traveled to Rome for the 2022 World Sleep Congress, an event put together by […]

NN Awarded the “Patients at the Heart” Grant

We are grateful to Harmony Biosciences for awarding us the Patients at the Heart grant. This will allow us to reach more people with narcolepsy virtually. So […]

A New Program that Connects Children with Narcolepsy

blished a new program that connects children with narcolepsy! Children, ages 8-13, who have been diagnosed with narcolepsy and their parent, are invited to join us virtually for a time of support, caring, and fun.

New Narcolepsy Study

The Sparkle 1501 Study for Narcolepsy Further development is needed in treating narcolepsy, a sleep disorder that disrupts the brain’s ability to regulate sleep-wake cycles, causing persistent […]

Executive Director Featured on NeurologyLive

At the beginning of March, our Executive Director, Dr. Eveline Honig, participated on a panel that discussed narcolepsy. The panel was assembled by NeurologyLive, a platform that […]

Focus Group Participants Needed to Develop a Pediatric Narcolepsy Patient-Reported Outcomes Scale (PN-PROS)

Currently, there is no tool to assess the symptoms of narcolepsy that most significantly impact the daily functioning of children with narcolepsy.  This study hopes to develop […]

Celebrate #GivingTuesdayNow

#GlobalTuesdayNow, which will take place on May 5, 2020, is a global day of giving and unity that came as an emergency response caused by COVID-19. We […]

Avadel Completes the REST-ON Phase 3 Trial of FT218

Avadel Pharmaceuticals plc, who is developing FT218, an investigational, once-nightly formulation of sodium oxybate for the treatment of excessive daytime sleepiness and cataplexy in patients with narcolepsy, […]