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NN Awarded the “Patients at the Heart” Grant

We are grateful to Harmony Biosciences for awarding us the Patients at the Heart grant. This will allow us to reach more people with narcolepsy virtually. So […]

A New Program that Connects Children with Narcolepsy

blished a new program that connects children with narcolepsy! Children, ages 8-13, who have been diagnosed with narcolepsy and their parent, are invited to join us virtually for a time of support, caring, and fun.

New Narcolepsy Study

The Sparkle 1501 Study for Narcolepsy Further development is needed in treating narcolepsy, a sleep disorder that disrupts the brain’s ability to regulate sleep-wake cycles, causing persistent […]

Executive Director Featured on NeurologyLive

At the beginning of March, our Executive Director, Dr. Eveline Honig, participated on a panel that discussed narcolepsy. The panel was assembled by NeurologyLive, a platform that […]

Focus Group Participants Needed to Develop a Pediatric Narcolepsy Patient-Reported Outcomes Scale (PN-PROS)

Currently, there is no tool to assess the symptoms of narcolepsy that most significantly impact the daily functioning of children with narcolepsy.  This study hopes to develop […]

Celebrate #GivingTuesdayNow

#GlobalTuesdayNow, which will take place on May 5, 2020, is a global day of giving and unity that came as an emergency response caused by COVID-19. We […]

Avadel Completes the REST-ON Phase 3 Trial of FT218

Avadel Pharmaceuticals plc, who is developing FT218, an investigational, once-nightly formulation of sodium oxybate for the treatment of excessive daytime sleepiness and cataplexy in patients with narcolepsy, […]

Jazz Pharmaceuticals Announce the FDA Acceptance of New Drug Application for JZP-258

Jazz Pharmaceuticals plc announced that the US Food and Drug Administration (FDA) accepted for filing with Priority Review the company’s New Drug Application seeking marketing approval for […]

A Message from Harmony Biosciences about WAKIX®

Harmony Biosciences, LLC released this important message about WAKIX® (pitolisant) during this critical time with the spread of COVID-19: “…we are working diligently to ensure the continuity […]

Year in Review

As we look towards 2020, we wanted to take a moment to highlight some of what we’ve been up to in 2019. We couldn’t have done it […]