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Become a Member for $5! Limited Time Offer!

Join Narcolepsy Network for $5Limited offer now through January 31, 2021 For a limited time, we are lowering our individual annual membership dues to $5. Now is […]

Support Us on #GivingTuesday

This year has been one to remember! While many of us are still struggling to find a new normal, we are proud of the programs we have […]

Narcolepsy Advocacy Program Workshop

Our first virtual Narcolepsy Advocacy Program Workshop was a huge success, training more than 30 youth and young adults. Narcolepsy Network will be hosting additional workshops throughout […]

New Narcolepsy Study

The Sparkle 1501 Study for Narcolepsy Further development is needed in treating narcolepsy, a sleep disorder that disrupts the brain’s ability to regulate sleep-wake cycles, causing persistent […]

Executive Director Featured on NeurologyLive

At the beginning of March, our Executive Director, Dr. Eveline Honig, participated on a panel that discussed narcolepsy. The panel was assembled by NeurologyLive, a platform that […]

Celebrate #GivingTuesdayNow

#GlobalTuesdayNow, which will take place on May 5, 2020, is a global day of giving and unity that came as an emergency response caused by COVID-19. We […]

Avadel Completes the REST-ON Phase 3 Trial of FT218

Avadel Pharmaceuticals plc, who is developing FT218, an investigational, once-nightly formulation of sodium oxybate for the treatment of excessive daytime sleepiness and cataplexy in patients with narcolepsy, […]

Introducing the Youth Ambassador Advisory Team

Caroline Arnette has been selected as Lead Youth Ambassador. She was the first lead YA to be named to the Youth Ambassador Program. Caroline has demonstrated the […]

Narcolepsy Advocates Attended Rare Disease Week

Narcolepsy Network sent 20 advocates to Washington, DC to be a voice for the narcolepsy community. Every year, the Rare Disease Legislative Advocates (RDLA), in coordination with […]

What to Expect During Rare Disease Week

General Tips and Notes Talk to other advocates. Push yourself outside your comfort zone. Make connections. Keep in touch with the people you meet. Rare Disease Week […]