Rare Disease Day February 28, 2023
Rare Disease Day is about raising awareness and generating change for the 300 million people worldwide living with a rare disease, their families and supporters. This […]
Clinical Research Matters: Takeaways From World Sleep Congress 2022
by Keith Harper, Board President Last week, Amy Kant, Transition Director, and I traveled to Rome for the 2022 World Sleep Congress, an event put together by […]
Support Us on #GivingTuesday
This year has been one to remember! While many of us are still struggling to find a new normal, we are proud of the programs we have […]
Narcolepsy Advocacy Program Workshop
Our first virtual Narcolepsy Advocacy Program Workshop was a huge success, training more than 30 youth and young adults. Narcolepsy Network will be hosting additional workshops throughout […]
New Narcolepsy Study
The Sparkle 1501 Study for Narcolepsy Further development is needed in treating narcolepsy, a sleep disorder that disrupts the brain’s ability to regulate sleep-wake cycles, causing persistent […]
Executive Director Featured on NeurologyLive
At the beginning of March, our Executive Director, Dr. Eveline Honig, participated on a panel that discussed narcolepsy. The panel was assembled by NeurologyLive, a platform that […]
Celebrate #GivingTuesdayNow
#GlobalTuesdayNow, which will take place on May 5, 2020, is a global day of giving and unity that came as an emergency response caused by COVID-19. We […]
Avadel Completes the REST-ON Phase 3 Trial of FT218
Avadel Pharmaceuticals plc, who is developing FT218, an investigational, once-nightly formulation of sodium oxybate for the treatment of excessive daytime sleepiness and cataplexy in patients with narcolepsy, […]
Introducing the Youth Ambassador Advisory Team
Caroline Arnette has been selected as Lead Youth Ambassador. She was the first lead YA to be named to the Youth Ambassador Program. Caroline has demonstrated the […]
Narcolepsy Advocates Attended Rare Disease Week
Narcolepsy Network sent 20 advocates to Washington, DC to be a voice for the narcolepsy community. Every year, the Rare Disease Legislative Advocates (RDLA), in coordination with […]
