Administration’s Deferred Action Policy

The National MPS Society, California Action Link for Rare Diseases (CAL RARE) and EveryLife Foundation asked patient organizations to sign on to a letter that asked the […]

Narcolepsy Network Signs On To a Letter to Prevent Rare Disease Patients from Deportation

Narcolepsy Network, together with 105 other rare disease patient organizations, signed on to a letter this week asking the Administration to ensure that migrant individuals who participate […]