Share Your Story

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Storytelling is one of the most effective ways to advocate for yourself and to raise awareness. Sharing your story can help others with narcolepsy feel validated while also appealing to teachers, policymakers, employers, and others in your community who have the power to improve accommodations for people with narcolepsy. Please share your story using the form below:

My Story

Name(Required)

First Last

Gender Pronouns

Email Address(Required)

Address(Required)

Street Address Address Line 2 City State / Province / Region ZIP / Postal Code Country

How has your life been impacted by narcolepsy?

What is one thing you'd like people to know about narcolepsy and the challenges that you've faced?

Have you faced barriers to care? If so, please tell us about these barriers (e.g. geographic location, financial, family support, etc)

What lessons have you learned that could potentially help others with narcolepsy?

What is one thing you're proud of as someone who is affected by narcolepsy or idiopathic hypersomnia?

Do you have photo(s) or video(s) that illustrate your journey with Narcolepsy?

Max. file size: 256 MB.

Videos should be under 2 minutes and in .mov or .mp4 format

Parental / Guardian Consent(Required)

I am 18 years old (or above) and agree to the terms set forth above for myself or a minor on whose behalf I am submitting.

I am under 18 years of age and am providing parental / guardian contact information below to confirm consent.

Name

First Last

Phone