Rare Disease Day is about raising awareness and generating change for the 300 million people worldwide living with a rare disease, their families and supporters. This awareness day falls on the last day in February each year. 

Want to share rare disease day downloads?

• Social media sharable content
• NORD’s “Show Your Stripes” social media shareable content

Learn more and join these events for Rare Disease Day and Rare Disease Week:

February 27, 2023 Events:

• Rare Disease Day at the FDA – virtual

February 28, 2023 Events:

• Rare Disease Day Facebook page
• Rare Disease Day at the NIH – in person and virtual
• Rare Disease Day with The Hill celebrating 40 years of the Orphan Drug Act- virtual 

February 28-March 2 Events:

• Rare Disease Week with Everylife Foundation / RDLA – in person and virtual