Dear Narcolepsy Network Community,

We’re excited to share an important development: Narcolepsy Network is hiring a new Executive Director to help lead our next chapter of growth, impact, and community engagement.

Together with Amy Kant (who has just stepped down from a senior transition role), our board has clarified our mission, sharpened our focus, and aligned around where Narcolepsy Network can deliver the most value to this community.

We remain fully committed to helping people living with narcolepsy and idiopathic hypersomnia navigate what’s next—whether someone’s newly diagnosed, undergoing a life transition, or confronting the day-to-day challenges of living with one of these complex conditions.

As Narcolepsy Network gears up to celebrate our 40th anniversary, we’re seeking a leader who can build on decades of trust to take our programs and partnerships to the next level. The right person will be a strong operator—someone who can lead a lean team, run tight programs, maintain the trust of our partners, and help us build toward a more sustainable future.

The full job description can be found here. We’ll begin accepting applications immediately, with a goal of onboarding this new hire in Q2 of 2026.

To our members, supporters, partners, and patients: thank you for continuing to engage with Narcolepsy Network. Your trust in our work—and your response to our programming—has made it clear: this community shows up when the work truly matters in people’s lives.

We’re proud of what we’ve built together, and even more excited about what comes next.

We’re not here to be the biggest or flashiest patient advocacy organization in this space. Rather, we’re here to meet patients where they are. To have the greatest impact on our community.

We’re here to deliver for you.

With gratitude,