Tell the FDA that People with Narcolepsy Need Access to CNS Stimulants
The FDA is seeking public input on the development and evaluation of abuse-deterrent formulations of central nervous system stimulants (CNS). While the intent is to deter abuse, […]
Meet #TeamNarcolepsy
Narcolepsy Network has been selected as an Official Charity Partner for the 2019 TCS New York City Marathon. We will join more than 350 official charity partners in […]
Study on the Mind-Body Approach to Improve Health-Related Quality of Life for PWNs
Narcolepsy Network Medical Advisory Board Member Dr. Jason Ong and his team at the Center for Circadian and Sleep Medicine at Northwestern University Feinberg School of Medicine […]
One Day Narcolepsy Seminar in NYC
Join us for our first one day narcolepsy seminar in New York City! These seminars will not replace the interactions at the annual conference, but will provide […]
New Survey Highlights the Prevalence of Misinformation and Misperception about Narcolepsy
We still have work to do in order to break down narcolepsy’s stereotypes. We are committed to bringing awareness about this disorder. Here are some of the […]
Celebrating World Narcolepsy Day
Thank you to everyone who sent in a stories for World Narcolepsy Day. We were able to share your stories on social channels all day long! Through […]
Jazz Pharmaceuticals Presents Positive JZP-258 Phase 3 Study Data at World Sleep 2019
Jazz Pharmaceuticals plc announced positive data from the Phase 3 study of its investigational medicine, JZP-258, for the treatment of cataplexy and excessive daytime sleepiness in adults […]
Administration’s Deferred Action Policy
The National MPS Society, California Action Link for Rare Diseases (CAL RARE) and EveryLife Foundation asked patient organizations to sign on to a letter that asked the […]
Narcolepsy Network Signs On To a Letter to Prevent Rare Disease Patients from Deportation
Narcolepsy Network, together with 105 other rare disease patient organizations, signed on to a letter this week asking the Administration to ensure that migrant individuals who participate […]
2019 Conference Schedule Now Available
We will have a jam-packed weekend for PWNs and their supporters at this year’s conference, taking place in Albuquerque, New Mexico on October 25-27. Check out the […]
