Support Us on #GivingTuesday
This year has been one to remember! While many of us are still struggling to find a new normal, we are proud of the programs we have […]
Positive Results from IH Phase 3 Study of Xywav
Jazz Pharmaceuticals plc announced positive top-line results from their Phase 3 double-blind, multicenter, placebo-controlled, randomized withdrawal study evaluating the efficacy and safety of an investigational use of […]
Mindfulness Meditation Program Study
If you have been diagnosed with narcolepsy and struggle with depression or anxiety, you may qualify for a study. The Behavioral Sleep Medicine Lab at Northwestern is […]
Mini-Conference Webinar: Legal Issues and Narcolepsy
We kicked off our first Virtual Mini-Conference series on October 17, 2020. We will host a total of five virtual mini-conferences to cover the topics that were […]
FDA Approved the Expanded Use Of WAKIX® (pitolisant) for the Treatment of Cataplexy
Harmony Biosciences Holdings, Inc. (“Harmony”) announced that the US Food and Drug Administration (FDA) has approved WAKIX® (pitolisant) for the treatment of cataplexy in adult patients with […]
Youth Ambassadors and Co-Chair Nominated for Award
Youth Ambassadors Brandon Beck and Caroline Arnette and Youth Ambassador Co-Chair Cynthia Zorn have been nominated for the 2020 RARE Champion of Hope Award by Global Genes, […]
Videos of Your Cataplexy
Do you have videos of what your cataplexy looks like and would be willing to share? Marilyn Swick and Dr. Todd Swick have been working in sleep […]
NN Awarded the “Patients at the Heart” Grant
We are grateful to Harmony Biosciences for awarding us the Patients at the Heart grant. This will allow us to reach more people with narcolepsy virtually. So […]
RESTORE Study of FT218
If you or your child are over 16 and have been diagnosed with narcolepsy, you may qualify for the RESTORE research study. Managing your narcolepsy symptoms is […]
Narcolepsy Advocacy Program Workshop
Our first virtual Narcolepsy Advocacy Program Workshop was a huge success, training more than 30 youth and young adults. Narcolepsy Network will be hosting additional workshops throughout […]
