Celebrate World Narcolepsy Day
Narcolepsy Network Partners with Patient Advocacy Organizations to Celebrate Global Narcolepsy Awareness Day World Narcolepsy Day will Take Place on September 22, 2019 Narcolepsy Network, the leading […]
In Memoriam: Dr. Christian Guilleminault
Dr. Christian Guilleminault passed away on July 9, 2019 from complications due to metastatic prostate cancer. He is survived by his wife and two sons. Dr. Guilleminault […]
Update on Pitolisant
Harmony Biosciences, LLC (Harmony) presented new data on Pitolisant at the SLEEP 2019 meeting. Harmony’s goal is to obtain FDA approval to market this new medication in […]
NN Attends European Narcolepsy Day as the Only Patient Support Group from the US
Our Executive Director, Eveline Honig, is pictured here with other narcolepsy leaders at the 10th European Narcolepsy Network’s Narcolepsy Day in Bern, Switzerland. Narcolepsy Network was the only patient […]
In Memoriam: Dr. Feldman
We are saddened to hear that one of our Medical Advisory Board Members passed away on Friday, June 21. Dr. Neil Turk Feldman passed away after complications […]
New Medication, Sunosi, Will Be Available Soon
Jazz Pharmaceuticals plc announced that the US Drug Enforcement Agency has designated solriamfetol, also known as Sunosi, as a Schedule IV medicine. The US Food and Drug Administration […]
NN Attends European Narcolepsy Day as the Only Patient Support Group from the US
Our Executive Director is pictured here with other narcolepsy leaders at the European Narcolepsy Network’s Narcolepsy Day in Bern, Switzerland. Narcolepsy Network was the only patient support organization from […]
PEACE (Pitolisant Expanded Access Clinical Evaluation) Program, an Expanded Access Program, is Now Open
An Expanded Access Program is now open to provide pitolisant* to adult patients with narcolepsy type 1 (with cataplexy) or type 2 (without cataplexy). Expanded access provides […]
Research Study for Adults with Narcolepsy – Share Your Story
People with narcolepsy face challenges and problems every day – symptoms and problems are not always recognized or understood by health care providers or members of the […]
New Study for Children with Narcolepsy
Has your child been diagnosed with narcolepsy or have you taken your child to the doctor where the main reason for the visit was to address the […]
