We Are Running the 2019 TCS New York City Marathon
We are excited to announce that Narcolepsy Network will once again be running the TCS New York City Marathon this fall as an Official Charity Partner! Last […]
Narcolepsy Advocates Went to Washington for Rare Disease Week
In year’s past, Narcolepsy Network was able to send our Executive Director or a board member or two to Rare Disease Week on Capitol Hill. This year, […]
Harmony Biosciences Announces File Acceptance Of Its New Drug Application For Pitolisant
In early 2018, NN put together a panel of people with narcolepsy (PWNs), doctors, and advocates to petition the FDA to grant fast-track status to new medications. […]
Year in Review
2018 was a busy year! We had the honor of speaking to representatives at the Food and Drug Administration (FDA) to encourage the development of new medications. […]
New Membership Levels and Benefits
We are making some changes to our membership program in 2019, with the introduction of three new levels of membership (including a much-requested family membership). In this […]
FDA Approves Xyrem in Pediatric Patients with Narcolepsy
The US Food and Drug Administration (FDA) approved Xyrem (sodium oxybate) for the treatment of cataplexy and excessive daytime sleepiness (EDS) in pediatric patients ages 7-17 with narcolepsy. Read […]
New Survey Identifies the Need For Increased Education and Treatment Options for Narcolepsy
Results of a survey of those living with narcolepsy, treating physicians, and the general public, bring attention to the impact of the disorder on daily life. The Know […]
Harmony Biosciences Presented Data On Pitolisant
Harmony Biosciences, LLC (Harmony) presented data on its investigational product, pitolisant, which has been studied for the treatment of both excessive daytime sleepiness (EDS) and cataplexy in […]
Research Survey for Parents of Children with Narcolepsy
Has your child been diagnosed with narcolepsy? Or, have you taken your child to the doctor where the main reason for the visit was to address the […]
Meet #TeamNarcolepsy
Narcolepsy Network has been selected as an Official Charity Partner for the 2018 TCS New York City Marathon. We will join more than 350 official charity partners in […]
