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Focus Group Participants Needed to Develop a Pediatric Narcolepsy Patient-Reported Outcomes Scale (PN-PROS)

Currently, there is no tool to assess the symptoms of narcolepsy that most significantly impact the daily functioning of children with narcolepsy.  This study hopes to develop […]

Avadel Pharmaceuticals Announces Results from its Phase 3 Trial of Once-Nightly FT218

Avadel Pharmaceuticals plc (Nasdaq: AVDL) announced positive topline data from its pivotal Phase 3 REST-ON trial assessing the safety and efficacy of FT218, an investigational, once-nightly formulation […]

Celebrate #GivingTuesdayNow

#GlobalTuesdayNow, which will take place on May 5, 2020, is a global day of giving and unity that came as an emergency response caused by COVID-19. We […]

Avadel Completes the REST-ON Phase 3 Trial of FT218

Avadel Pharmaceuticals plc, who is developing FT218, an investigational, once-nightly formulation of sodium oxybate for the treatment of excessive daytime sleepiness and cataplexy in patients with narcolepsy, […]

Jazz Pharmaceuticals Announce the FDA Acceptance of New Drug Application for JZP-258

Jazz Pharmaceuticals plc announced that the US Food and Drug Administration (FDA) accepted for filing with Priority Review the company’s New Drug Application seeking marketing approval for […]

Introducing the Youth Ambassador Advisory Team

Caroline Arnette has been selected as Lead Youth Ambassador. She was the first lead YA to be named to the Youth Ambassador Program. Caroline has demonstrated the […]

Aid for Patient and Community-Based Organizations Impacted by Coronavirus

We, along with 214 other organizations, wrote to Speaker Pelosi and Leaders McConnell, McCarthy, and Schumer to urge them to include nonprofit patient support community-based organizations in […]

A Message from Harmony Biosciences about WAKIX®

Harmony Biosciences, LLC released this important message about WAKIX® (pitolisant) during this critical time with the spread of COVID-19: “…we are working diligently to ensure the continuity […]

We Are Here to Support You

“We must be willing to get rid of the life we’ve planned, so as to have the life that is waiting for us.” – Joseph Campbell To […]

Narcolepsy Advocates Attended Rare Disease Week

Narcolepsy Network sent 20 advocates to Washington, DC to be a voice for the narcolepsy community. Every year, the Rare Disease Legislative Advocates (RDLA), in coordination with […]

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