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Jazz Pharmaceuticals Presents Positive JZP-258 Phase 3 Study Data at World Sleep 2019

Jazz Pharmaceuticals plc announced positive data from the Phase 3 study of its investigational medicine, JZP-258, for the treatment of cataplexy and excessive daytime sleepiness in adults […]

Administration’s Deferred Action Policy

The National MPS Society, California Action Link for Rare Diseases (CAL RARE) and EveryLife Foundation asked patient organizations to sign on to a letter that asked the […]

Narcolepsy Network Signs On To a Letter to Prevent Rare Disease Patients from Deportation

Narcolepsy Network, together with 105 other rare disease patient organizations, signed on to a letter this week asking the Administration to ensure that migrant individuals who participate […]

2019 Conference Schedule Now Available

We will have a jam-packed weekend for PWNs and their supporters at this year’s conference, taking place in Albuquerque, New Mexico on October 25-27. Check out the […]

Harmony Biosciences Announces FDA Approval Of WAKIX (pitolisant)

Harmony Biosciences, LLC (Harmony) announced that the FDA approved WAKIX® (pitolisant) for the treatment of excessive daytime sleepiness (EDS) in adult patients with narcolepsy. WAKIX® is the […]

Celebrate World Narcolepsy Day

Narcolepsy Network Partners with Patient Advocacy Organizations to Celebrate Global Narcolepsy Awareness Day World Narcolepsy Day will Take Place on September 22, 2019 Narcolepsy Network, the leading […]

In Memoriam: Dr. Christian Guilleminault

Dr. Christian Guilleminault passed away on July 9, 2019 from complications due to metastatic prostate cancer. He is survived by his wife and two sons.  Dr. Guilleminault […]

Update on Pitolisant

Harmony Biosciences, LLC (Harmony) presented new data on Pitolisant at the SLEEP 2019 meeting.  Harmony’s goal is to obtain FDA approval to market this new medication in […]

NN Attends European Narcolepsy Day as the Only Patient Support Group from the US

Our Executive Director, Eveline Honig, is pictured here with other narcolepsy leaders at the 10th European Narcolepsy Network’s Narcolepsy Day in Bern, Switzerland. Narcolepsy Network was the only patient […]

In Memoriam: Dr. Feldman

We are saddened to hear that one of our Medical Advisory Board Members passed away on Friday, June 21. Dr. Neil Turk Feldman passed away after complications […]

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