Listening to you is an important role for Narcolepsy Network. Because understanding what living with Narcolepsy and Idiopathic Hypersomnia (IH) is like, we’ve always strived to create safe and non-judgemental environments that allow for open dialogue and understanding. Part of this responsibility includes sharing and educating our community on clinical research that brings about new treatments and greater access to these therapies.

Narcolepsy Network’s Listening Project was created to elevate your voice with the biopharma community. The initiative provides biopharma companies with unprecedented, equal access to your diverse lived experiences. On Friday, November 13, prior to our 2026 New York National Seminar, Narcolepsy Network will host an in-person Listening Session for people living with Narcolepsy Type 1. This Listening Session is focused on gaining insights specifically into the experiences of people living with Narcolepsy Type 1 and associated medical needs including how patients manage treatment decisions, learn about new treatments, and navigate the treatment landscape. 

We have engaged Cullari Communications Global, a third-party stakeholder relations firm to design and facilitate this session. Together, we will manage the application and recruitment process and do this in an equitable fashion that is open to the public. Our goal is to engage a diverse group of people living with Narcolepsy Type 1, including those who haven’t previously had an opportunity to participate and share.

We are honored to be collaborating with Takeda Pharmaceuticals who is sponsoring this session.

Your voice is important. Please click “apply” today.