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Narcolepsy Network Health Care Access Focus Groups

May 26th, 2021

Did you find the right doctor? Is your medication covered by insurance? Do you have any narcolepsy-related health care access issues?

We want to learn about your experience!

Narcolepsy Network will be hosting two online voluntary health care focus groups to learn more about individuals’ narcolepsy journey to understand how we can better serve the community’s needs. These focus groups will ensure that each participant has enough time to share. We will anonymize all information collected and will only use the information gathered as a starting point to gather insight into individual and shared health care access issues. 

Have you had a hard time finding the right doctor? Are you having trouble getting your medication covered? Do you have other narcolepsy-related health care access issues? If you answered yes to any of the previous questions, we want to hear from you!

Narcolepsy Network will be hosting two online voluntary health care focus groups to learn more about individuals’ narcolepsy journey to better understand how we can serve the community’s needs. These focus groups will ensure that each participant has enough time to share. We will anonymize all information collected and will only use the information gathered as a starting point to gather insight into individual and shared health care access issues. 

The first Narcolepsy Network focus group, for parents of children/young adults with narcolepsy, will be held on Wednesday, June 16, at 7:00 PM ET/4:00 PM PT.

The second Narcolepsy Network focus group, for people with narcolepsy, will be held on Wednesday, June 23, at 7:00 PM ET/4:00 PT.

Interested? Please fill out this form by June 9. By June 11, everyone who filled out the form will receive an email from Narcolepsy Network as to whether or not they have been selected. Please contact [email protected] with questions.

Please note, this is a voluntary unpaid opportunity to help provide insight into how Narcolepsy Network can better serve the community.

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Date Created: May 26th, 2021
Last Updated: May 27th, 2021