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Clinical Research

What are Clinical Trials or Studies?

Who conducts Clinical Trials or Studies?

How do you participate in Clinical Trials or Studies?

What questions to ask about Clinical Trial or Study participation?

What is the Orphan Drug Act for Rare Disease?

Search for trials and studies: Clinicaltrials.gov


Clinical Trials & Studies in Narcolepsy:

Great strides have been made in recent years in understanding the cause(s) of narcolepsy, but much work remains to be done. Your participation in research studies helps researchers to better understand narcolepsy and to test investigational drugs that may benefit people with narcolepsy.

Clinical trials and studies are sponsored by medical/academic institutions, pharmaceutical and biotech companies. Narcolepsy Network shares clinical and trial information in an unbiased and consistent manner. As a patient organization, please note that Narcolepsy Network is not engaged in promoting, advising or recruiting activities.

In order to find out more about each clinical trial or study, click the hyperlinks below.

 


Active Medical / Academic Studies:

Validation of Pediatric Narcolepsy Patient Reported Outcomes (PN-PROS)

Understanding Social and Relationship Health in Adolescents with Narcolepsy

Brigham and Women’s Hospital & Harvard Medical School

FDA Risk Evaluation and Mitigation Strategy (REMS)- Xyrem or Xywav

EXPLAIN Study (Examination of Partners and Loved Ones with Idiopathic Hypersomnia and Narcolepsy)

 


Active Pharmaceutical / Biotech Studies and Trials:



RESTORE


SYMPHONYstudy.com




INTUNE Study for adults with Idiopathic hypersomnia




Nexus Narcolepsy Registry




Narcolepsy Clinical Study

 

 


Press Releases:

**UPDATE** (May 10, 2022): All press releases, announcements, and statements from industry partners have been moved to the Industry News page of our website.