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Clinical Information

What are Clinical Trials or Studies?

Who conducts Clinical Trials or Studies?

How do you participate in Clinical Trials or Studies?

What questions to ask about Clinical Trial or Study participation?

What is the Orphan Drug Act for Rare Disease?


Clinical Trials & Studies in Narcolepsy

Great strides have been made in recent years in understanding the cause(s) of narcolepsy, but much work remains to be done. Your participation in research studies helps researchers to better understand narcolepsy and to test investigational drugs that may benefit people with narcolepsy.

Clinical trials and studies are sponsored by medical/academic institutions, pharmaceutical and biotech companies. Narcolepsy Network shares clinical and trial information in an unbiased and consistent manner. As a patient organization, please note that Narcolepsy Network is not engaged in promoting, advising or recruiting activities.

In order to find out more about each clinical trial or study, click the hyperlinks below.


Active Medical / Academic Research



Boston Children’s Hospital

Validation of Pediatric Narcolepsy Patient Reported Outcomes (PN-PROS)

Understanding Social and Relationship Health in Adolescents with Narcolepsy



Northwestern University
Mindfulness Meditation Study



Active Pharmaceutical / Biotech Research


Avadel Pharmaceuticals


Narcolepsy Network would like to share a press release that is posted on Avadel Pharmaceuticals’ website.


Axsome Therapeutics, Inc.


Jazz Pharmaceuticals
Nexus Narcolepsy Registry


Suven Pharmaceuticals
Narcolepsy Clinical Study


Takeda Pharmaceuticals
Narcolepsy Network would like to share a press release that is posted on Takeda’s website.