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News and Events

Suddenly Sleepy Saturday 2024 Recap

Fabulous year for Suddenly Sleepy Saturday—Thank you! Wow, we had a great turnout this year to celebrate Suddenly Sleepy Saturday on March 9th, the day to promote […]

2024 Call for Narcolepsy Network Board Nominations

Today, I am excited to announce an open call for nominations to the Narcolepsy Network Board of Directors. We’re looking for service-oriented leaders who: Have a desire […]

Clinical Trials: How do clinical trial types differ?

Clinical trials are investigational research studies that have various objectives. Our community is benefiting from a great focus on treatment trials that investigate new compounds. The objective […]

Patient Journey Scientific Research

Last year, Narcolepsy Network partnered with Axsome Therapeutics on scientific research. KJT Group, an independent research firm, conducted an unbranded study in order to ensure patient privacy. […]

Apr 10, 2024 Webinar: Discussion with Dr. Krahn: Narcolepsy & Idiopathic Hypersomnia Basics

Narcolepsy and idiopathic hypersomnia are lifelong neurological disorders. They have similarities and differences in age of onset, symptoms, coexisting problems, and therapies. At our 2023 Conference, Dr. […]

A Mother-Daughter Bond Through Narcolepsy

Narcolepsy Network Board Member, Carol Gilmour, and her daughter, Caroline Arnette, former Narcolepsy Network Lead Youth Ambassador, are on Capitol Hill this week advocating for rare disease […]

Mar 12, 2024 Webinar: Patient Panel: Living with Narcolepsy & Idiopathic Hypersomnia

Interactive Webinar: Patient Panel: Living with Narcolepsy & Idiopathic HypersomniaTuesday, March 12th at 6:30pm ET / 3:30pm PT Let’s Share Experiences. Want to connect on Living with […]

Feb 13, 2024 Lifestyle Webinar: Understanding ADA/504 and Navigating Accommodations

Understanding ADA/504 and Navigating AccommodationsTuesday, February 13th at 7pm ET / 4pm PT In this interactive webinar, we will explore the impact of your disability as it […]

Jan 30, 2024 Lifestyle Webinar: How to start and run a peer-led support group

Peer-led Support Groups help others feel understood, not alone. At our 2023 Annual Conference in Denver, we hosted a workshop for those interested in starting local support […]

Mind-Body Tools for Rest & Wakefulness

Short breathing, movement, and meditation practices can be an effective way to support our own well-being and can complement interventions directed by our doctors.  We can use […]