Donate to Make Twice the Impact

Thanks to a few generous donors, if you make a donation before January 1, 2021, they will match your gift up to $10,000. This means your donation […]

Positive Results from IH Phase 3 Study of Xywav

Jazz Pharmaceuticals plc announced positive top-line results from their Phase 3 double-blind, multicenter, placebo-controlled, randomized withdrawal study evaluating the efficacy and safety of an investigational use of […]

Youth Ambassadors and Co-Chair Nominated for Award

Youth Ambassadors Brandon Beck and Caroline Arnette and Youth Ambassador Co-Chair Cynthia Zorn have been nominated for the 2020 RARE Champion of Hope Award by Global Genes, […]

Videos of Your Cataplexy

Do you have videos of what your cataplexy looks like and would be willing to share? Marilyn Swick and Dr. Todd Swick have been working in sleep […]

NN Awarded the “Patients at the Heart” Grant

We are grateful to Harmony Biosciences for awarding us the Patients at the Heart grant. This will allow us to reach more people with narcolepsy virtually. So […]

Aid for Patient and Community-Based Organizations Impacted by Coronavirus

We, along with 214 other organizations, wrote to Speaker Pelosi and Leaders McConnell, McCarthy, and Schumer to urge them to include nonprofit patient support community-based organizations in […]