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Patient Experience & Program Study

What is the Patient Experience & Program Study and why is Narcolepsy Network undertaking this work? The goal of the Patient Experience & Program Study is to […]

Suddenly Sleepy Saturday 2024 Recap

Fabulous year for Suddenly Sleepy Saturday—Thank you! Wow, we had a great turnout this year to celebrate Suddenly Sleepy Saturday on March 9th, the day to promote […]

2024 Call for Narcolepsy Network Board Nominations

Today, I am excited to announce an open call for nominations to the Narcolepsy Network Board of Directors. We’re looking for service-oriented leaders who: Have a desire […]

Narcolepsy Network Board Nomination Form

Thank you for your engagement in putting forward a nominee. We are looking for people who represent the different facets of our community, and those with experience […]

Clinical Trials: How do clinical trial types differ?

Clinical trials are investigational research studies that have various objectives. Our community is benefiting from a great focus on treatment trials that investigate new compounds. The objective […]

Postponed: Behavioral Tools for Hypersomnia webinar

We will explore the valuable ways behavioral tools can help manage your day and your mental health. You will learn the Pomodoro Method, a technique to monitor […]

June 15, 2024—Join us in Charlottesville

Please join us for lunch and an afternoon to connect and learn in Charlottesville. Learn from sleep specialists and advocates, and participate in Roundtable Discussions. For those […]

Patient Journey Scientific Research

Last year, Narcolepsy Network partnered with Axsome Therapeutics on scientific research. KJT Group, an independent research firm, conducted an unbranded study in order to ensure patient privacy. […]

Apr 10, 2024 Webinar: Discussion with Dr. Krahn: Narcolepsy & Idiopathic Hypersomnia Basics

Narcolepsy and idiopathic hypersomnia are lifelong neurological disorders. They have similarities and differences in age of onset, symptoms, coexisting problems, and therapies. At our 2023 Conference, Dr. […]

Understanding Idiopathic Hypersomnia