Keith is a passionate advocate for our community and has served on Narcolepsy Network’s Board of Directors since 2015. He runs a support group in New York City providing support to 400+ members of the community. He was diagnosed with narcolepsy in 2005. Keith’s experience spans branding, print design, and digital design over 15+ years.

Paul is an editor with experience managing teams and shaping complex content. He is also the father of a child who has narcolepsy. Paul has broad expertise in technology, personal finance, and B2C and B2B services.

Shawn has a long and successful working history, including being an I.T. Executive for over 25 years. Currently he owns and runs a full-service professional Handyman business in Florida.

Rachel is a second-generation Filipina American with over five years of experience in clinical research operations. Living with type 2 narcolepsy, she is dedicated to advocating for inclusive research and increasing narcolepsy awareness.

A native of Puerto Rico and fluent in both English and Spanish, Desireé has an extensive background as a patient advocate. At Disability Rights North Carolina, she runs a program devoted to screening and training for brain injuries.

Based in Arizona, Mike is a retirement planning consultant who has spent years as an ardent voice for the narcolepsy community. His advocacy work includes writing, podcasting, and moderating both live and virtual support groups. Mike has presented at Narcolepsy Network conferences and has frequently represented the sleep community during Rare Disease Week events in Washington, D.C.

John was an incredible advocate and supporter of the Narcolepsy Network. His dedication and leadership continue to inspire our community.

Niss is the founder of the Narcolepsy Network and has guided the organization’s growth and mission since its inception. Her commitment to raising awareness and supporting the community has had a lasting impact.