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2016 Conference Materials

This page provides presentation slides and other materials from our 2016 conference, held October 21-23 in Orlando, Florida. Please note, some presenters, particularly those presenting unpublished research findings, did not grant permission for their materials to be posted here.

Gina Dennis: Diet for Narcolepsy, My Family’s Awakening

Stephanie Fischer, Senior Director of Patient Engagement and Communication, EveryLife Foundation for Rare Diseases: Her presentation explains why public policy is critical to encourage the development of new treatments for rare diseases and how y ou can get involved.

Thomas Freedom, MD, FAASM: How to Choose a Sleep Doctor

Thomas Freedom, MD, Program Director, Sleep Medicine, Department Neurology, NorthShore University Healthy System: Review of Sleep Disorders

Eveline Honig, MD, MPH and Mark Patterson, MD, PhD: You, Too, Can Hold a Fundraiser

Ester Rose Park, MS, RD, LDN: Nutrition, Narcolepsy & Wakefulness: What’s the Connection?

Mark Patterson: Nexus Narcolepsy Registry

Piper Paul, Esq.: How to Effectively Advocate for Accommodations within the Educational Setting from Elementary School Through Graduate School

Piper Paul, Esq. and Glenn A. Brown, Esq.: School Advocacy: Understanding and Utilizing State and Federal Laws, Such as Section 504 of the Rehabilitation Act of 1973 and the IDEA

Vanessa Waldman: How to Talk About Narcolepsy (as a Youth)

Phyllis C. Zee, MD, PhD: Narcolepsy: Update on Diagnosis and Treatment




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