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PWN in the News

People with Narcolepsy (PWN) in the News

Support Group Mourns Member
Joan Thonet Hall, age 97, passed away on April 10, 2016. Joan was a member of the Midwest Narcolepsy Support Group for the last 8 years; her son brought her every month until recently. She lead an amazing life and narcolepsy was a part of it.  Her stories were often funny, sad, and entertaining. To read her full obituary and funeral information, go here.

How does narcolepsy and cataplexy affect daily life?
New York Magazine interviews one PWN to give some insight. Read the Q&A here.

Five Common Misconceptions People With Narcolepsy Hear
Themighty.com takes on common misconceptions PWNs hear

High School Student and Youth Ambassador Eecognized with Certificate of Appreciation
Check out this video and this article about coaches and school staff that are making a difference for a student living with narcolepsy

Governor of Oregon Proclaims Suddenly Sleepy Saturday
A Springfield, Oregon man helped convince Gov. Kate Brown to proclaim March 12 as the first Suddenly Sleepy Saturday. Go here to learn more.

2016 Bed Race
Miss the 2016 Bed Race? Board Member, Keith Harper wrote a blog about it!

Mee Warren
Board Member, Mee Warren, received the 2015 Wall Street Women Trailblazer Award from Traders Magazine.

Nicole Jeray
Professional gofler Nicole Jeray was featured in the New York Times.

Lukas Hunter
Lukas Hunter was mentioned in the article titled “Raising awareness of narcolepsy” for being named a Young Ambassador, Oconomowoc Enterprise (Wisconsin)

Keith Harper
Congrats to Keith, NN Board Member, for running in and completing the 2015 New York City Marathon!

Portraits of Narcolepsy in New York City, The Atlantic

Julie Kliegman
I have narcolepsy, and I hate that people think I’m just lazy, Vox.com

Angie Collins
Purpose(fully) Living With Narcolepsy, TEDx Talks via YouTube

Mee Warren
Women in Finance Outstanding Contribution: Mee Warren, Markets Media

Romeo Espana
Drones — How I Learned to Stop Worrying and Love My Autonomous OverlordsTEDx Talks via YouTube

Ciro Di Ruocco
Wide awake and sleeping: Discussing narcolepsy, The Navigator

Nicole Jeray (LPGA Golfer)
Pictures of You: Nicole Jeray, professional golfer with narcolepsyNeurology Now magazine
Nicole Jeray’s best round of year has her in contention after first round of Mobile Bay LPGA Classic

Danielle Brooks
Swimmer doesn’t let narcolepsy slow her down, The Atlanta Journal-Constitution
Buford’s Brooks adjusts to sleep disorder to continue swimming career, Gwinnet Daily Post

Julie Flygare (author and Narcolepsy advocate)
Stanford’s Research Provides Hope for Patients with NarcolepsyHuffington Post
Wide Awake and Dreaming a Memoir of Narcolepsy now available

Kristen Girault (Miss Louisiana USA 2013)
From cancer to narcolepsy, Miss USA contestants ‘inspired’ by health battles, Today

Katy Scruton and Robby Roden
You Snooze You…Win?, Texas Realtor Magazine
ZZZ, the Daily Struggle of Narcolepsy, YouTube
True Life: I Have Narcolepsy, MTV

Julie Ann Fain
True Life: I Have Narcolepsy, MTV

Tracy Bonner (Olympic Synchronized Diver, author of “Athletics and Narcolepsy” and cast member of Cirque Du Soleil’s “O” in Las Vegas)
Awakened from a Nightmare: Diagnosed with narcolepsy, Tracy Bonner successfully fought a drug suspension

Muhammad Daud
Living With Cataplexy and Narcolepsy
My Day Out with Narcolepsy – Part 1, YouTube
My Day Out with Narcolepsy – Part 2, YouTube
My Day Out with Narcolepsy – Part 3, YouTube

Patricia Higgins
My Story: Living with Narcolepsy

Clea Howard
Too Often, Doctors Overlook Narcolepsy

Bill Johnson (Retired USAF Nurse)
Waking up to NarcolepsyCarolina Alumni Review

Jimmy Kimmel (ABC Talk Show Host)
What It Feels Like to Have Narcolepsy

Sergio Kindle (Baltimore Ravens)
Ravens rookie suffers from common sleep disorder
, Baltimore Sun

Aaron Mackie
Now Teachers Are Awake to Aaron’s Rare Sleep Condition

Grace Moylan
Narcolepsy Helps Grace at Artexpress

Robb Peterson
Asleep with the Enemy

Wendy Richmond
The mother who faints if she says: I love you

Sarah Shonyo
The Big Sleep: Learning to live with narcolepsy

Reece Williams
The seven-year-old boy with such severe narcolepsy that he couldn’t kick a ball without falling asleep
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