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NN sponsors retreat for kids with narcolepsy and their families

Narcolepsy Network has partnered with The Center for Courageous Kids to offer a weekend retreat for kids with narcolepsy and their families.  The retreat will be held April […]

Narcolepsy Network announces 2014 award recipients

Narcolepsy Network’s annual awards recognize those who have made significant contributions to the narcolepsy community.  The recipients received their awards at our annual conference, held October 17-19, […]

Narcolepsy Community Turns a Punch Line into an Opportunity for Awareness

Narcolepsy Network (NN) and the entire narcolepsy community have long worked to dispel myths and misunderstanding about narcolepsy. When Honda Motor Company released a TV commercial using […]

Attend Rare Diseases Week in D.C. with a travel scholarship

Rare Disease Legislative Advocates, a program of the EveryLife Foundation for Rare Diseases, is set to host another full week of activities on Capitol Hill the week of […]

Petition seeks to add narcolepsy to SSDI “Blue Book”

Add your name to a petition asking that narcolepsy be added to the Social Security Disability Insurance (SSDI) “Blue Book.”  The blue book, officially called Disability Evaluation […]

LPGA golfer Nicole Jeray raises narcolepsy funds and awareness

The 2014 LPGA season is underway and pro golfer and PWN Nicole Jeray is raising narcolepsy awareness and funds for narcolepsy organizations including Narcolepsy Network with her […]

NN Blog — Back to School

September 10, 2014 — Back to School By Melissa Patterson Outreach Coordinator On a recent visit home, my mother was in a cleaning mood and she promptly […]

Boston-area research study seeks children with narcolepsy

Children with narcolepsy wanted for research study on obesity. Help us study why children with narcolepsy often become overweight. Research doctors at Boston Children’s Hospital seek children with narcolepsy […]

FDA report on narcolepsy public meeting is released

The U.S. Food and Drug administration (FDA) has released its final report on the public meeting on narcolepsy.  “The Voice of the Patient” summarizes comments and themes […]

NN Blog – Dear Honda: Narcolepsy Isn’t Funny

Dear Honda: Narcolepsy Isn’t Funny By Melissa Patterson Narcolepsy Network Outreach Coordinator posted June 24, 2014 To those of us with narcolepsy, it pretty much goes without saying […]