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“Neurology Now” magazine features PWN Nicole Jeray

The April/May 2014 issue of “Neurology Now” magazine features an interview with Nicole Jeray.  Nicole is a person with narcolepsy (PWN), an LPGA golfer and outstanding narcolepsy […]

Conference scholarship fundraiser exceeds goal

Our conference scholarship fundraising campaign, held during the month of March, has exceeded its goal, raising more than $11,000. Thank you to all the generous donors! Proceeds […]

Jazz Pharmaceuticals acquires investigational medication for EDS

Jazz Pharmaceuticals has acquired rights to ADX-N05 from Aerial BioPharma, LLC.  ADX-N05 is a novel compound in clinical development for the treatment of excessive daytime sleepiness in patients with […]

Orexin nasal spray shows promise as a treatment for narcolepsy

New research shows that an orexin nasal spray holds promise as a treatment for the sleep alterations and EDS that are common symptoms of narcolepsy.  The study, […]

New research links narcolepsy with cataplexy to a genetic variant

New research in Europe shows that almost 100% of study subjects who had a particular variation in the HLA-DQB1 gene had narcolepsy with cataplexy.  The findings are […]

New study may show the cause of H1N1-triggered narcolepsy

A new study from Stanford University School of Medicine shows that in genetically susceptible people, narcolepsy can sometimes be triggered by a similarity between a protein called […]

Pediatric narcolepsy study in Texas needs participants

Do you have a child between 7-17 years old, diagnosed with narcolepsy who had a recent experience of cataplexy attack (within the last 2 months) and had a […]

Children needed for Boston-area narcolepsy study

Children with narcolepsy wanted in the Boston area for research study on obesity: Help us understand why children with narcolepsy often become overweight.  Research doctors at Boston Children’s Hospital […]

Canadian TV program explores rise in childhood narcolepsy cases

The CTV program W5 aired a report exploring the reasons behind a recent increase in the number of cases of childhood narcolepsy reported in Canada. The November […]

Video of the FDA meeting on narcolepsy available online

Those who missed the historic FDA meeting on narcolepsy still have a chance to see this historic event. The FDA has made video of the web broadcast […]