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Conference scholarship fundraiser exceeds goal

Our conference scholarship fundraising campaign, held during the month of March, has exceeded its goal, raising more than $11,000. Thank you to all the generous donors! Proceeds […]

Jazz Pharmaceuticals acquires investigational medication for EDS

Jazz Pharmaceuticals has acquired rights to ADX-N05 from Aerial BioPharma, LLC.  ADX-N05 is a novel compound in clinical development for the treatment of excessive daytime sleepiness in patients with […]

Orexin nasal spray shows promise as a treatment for narcolepsy

New research shows that an orexin nasal spray holds promise as a treatment for the sleep alterations and EDS that are common symptoms of narcolepsy.  The study, […]

New research links narcolepsy with cataplexy to a genetic variant

New research in Europe shows that almost 100% of study subjects who had a particular variation in the HLA-DQB1 gene had narcolepsy with cataplexy.  The findings are […]

New study may show the cause of H1N1-triggered narcolepsy

A new study from Stanford University School of Medicine shows that in genetically susceptible people, narcolepsy can sometimes be triggered by a similarity between a protein called […]

Pediatric narcolepsy study in Texas needs participants

Do you have a child between 7-17 years old, diagnosed with narcolepsy who had a recent experience of cataplexy attack (within the last 2 months) and had a […]

Children needed for Boston-area narcolepsy study

Children with narcolepsy wanted in the Boston area for research study on obesity: Help us understand why children with narcolepsy often become overweight.  Research doctors at Boston Children’s Hospital […]

Canadian TV program explores rise in childhood narcolepsy cases

The CTV program W5 aired a report exploring the reasons behind a recent increase in the number of cases of childhood narcolepsy reported in Canada. The November […]

Video of the FDA meeting on narcolepsy available online

Those who missed the historic FDA meeting on narcolepsy still have a chance to see this historic event. The FDA has made video of the web broadcast […]

Narcolepsy community shines at FDA public meeting

Representatives from Narcolepsy Network joined hundreds of others from the narcolepsy community at the FDA’s public meeting on narcolepsy drug development on September 24.  Approximately 150 people […]

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