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Attend Rare Diseases Week in D.C. with a travel scholarship

Rare Disease Legislative Advocates, a program of the EveryLife Foundation for Rare Diseases, is set to host another full week of activities on Capitol Hill the week of […]

Petition seeks to add narcolepsy to SSDI “Blue Book”

Add your name to a petition asking that narcolepsy be added to the Social Security Disability Insurance (SSDI) “Blue Book.”  The blue book, officially called Disability Evaluation […]

LPGA golfer Nicole Jeray raises narcolepsy funds and awareness

The 2014 LPGA season is underway and pro golfer and PWN Nicole Jeray is raising narcolepsy awareness and funds for narcolepsy organizations including Narcolepsy Network with her […]

Research trial seeks people with narcolepsy with cataplexy in multiple U.S. cities

Researching Options in Narcolepsy -Cataplexy Birmingham, AL Sleep Disorder Center of Alabama is conducting a clinical research trial for ages 18-55 years diagnosed with Narcolepsy-Cataplexy. Qualified participants […]

NN Blog — Back to School

September 10, 2014 — Back to School By Melissa Patterson Outreach Coordinator On a recent visit home, my mother was in a cleaning mood and she promptly […]

Boston-area research study seeks children with narcolepsy

Children with narcolepsy wanted for research study on obesity. Help us study why children with narcolepsy often become overweight. Research doctors at Boston Children’s Hospital seek children with narcolepsy […]

FDA report on narcolepsy public meeting is released

The U.S. Food and Drug administration (FDA) has released its final report on the public meeting on narcolepsy.  “The Voice of the Patient” summarizes comments and themes […]

NN Blog – Dear Honda: Narcolepsy Isn’t Funny

Dear Honda: Narcolepsy Isn’t Funny By Melissa Patterson Narcolepsy Network Outreach Coordinator posted June 24, 2014 To those of us with narcolepsy, it pretty much goes without saying […]

Honda apologizes to the narcolepsy community for offensive ad

Representatives from Honda have contacted Narcolepsy Network to apologize for the “Synth and Seattlites” ad for the Honda Fit.  They have confirmed that the ad has been […]

Tell Honda that narcolepsy is not a joke

On June 19, Honda released a new ad for its Honda Fit automobile.  In the ad, titled “Synth and Seattleites,”  a person who says he has narcolepsy fall asleep […]