Adjust Font Sizing:

Provigil® State Settlement

The settlement concerns the price that people in 48 states and the District of Columbia paid for Provigil® and its generic versions. No questions are being raised […]

Participants Are Needed for Clinical Trial

Flamel, part of the Avadel Pharmaceuticals, is looking for subjects to participate in their clinical trial evaluating their once nightly sodium oxybate for the treatment of Excessive […]

NORD Copay Assistance Program

Since 1987, NORD (National Organization for Rare Diseases), an organization whose mission is to identify, treat, and cure rare diseases through education, advocacy, and patient services has provided assistance […]

The Narcolepsy Education Toolbox

We are excited to present the Narcolepsy Education Toolbox with the partnership of Global Genes, a leading rare disease advocacy organization.  Read, download, print, and distribute any […]

Help Researchers Learn More About Narcolepsy

The Nexus Narcolepsy Registry is an effort by the narcolepsy research and advocacy communities in collaboration with Jazz Pharmaceuticals that will collect de-identified data from a large […]

Self-Management Techniques for Excessive Daytime Sleepiness

Check out this study published in the Journal of Sleep Disorders & Therapy. It is based on a survey that was developed by Lois E. Krahn and […]

Upcoming support group meetings

Having the support of other people with narcolepsy is an important part of living well with narcolepsy. One of the best ways to get this support is […]

Tips to make the back-to-school transition easier

  For tips on staying organized this school year, visit our blog.

Looking for the Epworth Sleepiness Scale mentioned in “Annie’s Mailbox”? Find it here!

The nationally syndicated advice column, “Annie’s Mailbox” includes a response about narcolepsy on July 30, 2o15. It suggested taking the Epworth Sleepiness Scale to asses your own, or a […]

New research offers insights into the cause of narcolepsy

An international team of researchers led by Lawrence Steinman, MD, of Stanford University, has found some of the first solid evidence that narcolepsy may be a so-called […]

Narcolepsy researcher named a top stem cell scientist

Florian Merkle, PhD, is one of five scientists the University of Southern California calls “the next generation of top stem cell scientists.” Merkle and his counterparts recently […]

New research provides more evidence that narcolepsy is an autoimmune disorder

New research published in the journal “Pharmacological Research” shows that a particular autoimmune process triggers the loss of orexin neurons in people with narcolepsy. Researchers at Tel […]

Narcolepsy Network remembers Oleta Elliott

Narcolepsy Network mourns the loss of Oleta Elliott, who passed away on March 13 in Arizona following a long battle with cancer. She was 68 years old. […]

NN supporter Rubin Naiman interviewed by Arianna Huffington

Narcolepsy Network friend and supporter Dr. Rubin Naiman was recently interviewed by Arianna Huffington.  Their conversation about the importance of dreams appears in the Huffington Post. Read […]

Narcolepsy Network premiers new informational video on Suddenly Sleepy Saturday

March 7 is Suddenly Sleepy Saturday, a day for narcolepsy awareness.  To help raise awareness, Narcolepsy Network has created this informational video. Please watch to learn more […]

NN Blog: Getting Organized

So it’s the first month of 2015 and like a lot of people, I’ve been making some resolutions. One of the things I’m trying to work on […]

Neuro Film Festival competition offers PWNs a chance to share their story

The American Brain Foundation is looking for short, compelling videos about living with narcolepsy or other neurological disorders for its Neuro Film Festival.  The festival’s goal is to raise […]

Narcolepsy Community Turns a Punch Line into an Opportunity for Awareness

Narcolepsy Network (NN) and the entire narcolepsy community have long worked to dispel myths and misunderstanding about narcolepsy. When Honda Motor Company released a TV commercial using […]

Petition seeks to add narcolepsy to SSDI “Blue Book”

Add your name to a petition asking that narcolepsy be added to the Social Security Disability Insurance (SSDI) “Blue Book.”  The blue book, officially called Disability Evaluation […]

LPGA golfer Nicole Jeray raises narcolepsy funds and awareness

The 2014 LPGA season is underway and pro golfer and PWN Nicole Jeray is raising narcolepsy awareness and funds for narcolepsy organizations including Narcolepsy Network with her […]

NN Blog — Back to School

September 10, 2014 — Back to School By Melissa Patterson Outreach Coordinator On a recent visit home, my mother was in a cleaning mood and she promptly […]

FDA report on narcolepsy public meeting is released

The U.S. Food and Drug administration (FDA) has released its final report on the public meeting on narcolepsy.  “The Voice of the Patient” summarizes comments and themes […]

NN Blog – Dear Honda: Narcolepsy Isn’t Funny

Dear Honda: Narcolepsy Isn’t Funny By Melissa Patterson Narcolepsy Network Outreach Coordinator posted June 24, 2014 To those of us with narcolepsy, it pretty much goes without saying […]

Honda apologizes to the narcolepsy community for offensive ad

Representatives from Honda have contacted Narcolepsy Network to apologize for the “Synth and Seattlites” ad for the Honda Fit.  They have confirmed that the ad has been […]

People with narcolepsy profiled in “The Atlantic” magazine

The current The Atlantic magazine includes the article “Portraits of Narcolepsy in New York City,” which offers a look into the lives of five New Yorkers with […]

Research shows that a micropump may help eliminate middle-of-the-night medication doses

Researchers at Flamel Technologies are researching use of a micropump to deliver Sodium Oxybate. Recent clinical trials show that the pump has the potential to eliminate the […]

“Neurology Now” magazine features PWN Nicole Jeray

The April/May 2014 issue of “Neurology Now” magazine features an interview with Nicole Jeray.  Nicole is a person with narcolepsy (PWN), an LPGA golfer and outstanding narcolepsy […]

Orexin nasal spray shows promise as a treatment for narcolepsy

New research shows that an orexin nasal spray holds promise as a treatment for the sleep alterations and EDS that are common symptoms of narcolepsy.  The study, […]

New research links narcolepsy with cataplexy to a genetic variant

New research in Europe shows that almost 100% of study subjects who had a particular variation in the HLA-DQB1 gene had narcolepsy with cataplexy.  The findings are […]

New study may show the cause of H1N1-triggered narcolepsy

A new study from Stanford University School of Medicine shows that in genetically susceptible people, narcolepsy can sometimes be triggered by a similarity between a protein called […]

Canadian TV program explores rise in childhood narcolepsy cases

The CTV program W5 aired a report exploring the reasons behind a recent increase in the number of cases of childhood narcolepsy reported in Canada. The November […]

Video of the FDA meeting on narcolepsy available online

Those who missed the historic FDA meeting on narcolepsy still have a chance to see this historic event. The FDA has made video of the web broadcast […]

Patients’ Journey to a Narcolepsy Diagnosis

A poster presentation by Lawrence P. Cater, PhD, Christine Acebo, PhD, and Ann Y. Kim, MA, of Jazz Pharmaceuticals provides insights into how people with narcolepsy are […]

Narcolepsy Network mourns the passing of Sharon Smith

Dear Friends, It is with great sadness that we share with you the news that Sharon Smith, past president of Narcolepsy Network (NN), has passed away. She […]

We mourn the loss of Board Member and Co-Founder Sheryll Sue Carella

Sheryll Sue Carella 6/5/36 – 4/2/13 Sue was born in Iowa but grew up in San Bruno, CA.  She was a graduate of Capachino High School, San […]

Experts discuss the relationship between sleep and memory

On the February 8 edition of National Public Radio’s “Talk of the Nation,” a panel of experts discussed the link between sleep, memory and cognition. As people […]

Excessive daytime sleepiness resources now available online

The National Sleep Foundation’s new online Excessive Daytime Sleepiness resource center helps you understand a condition that is often widely misunderstood. Explore more 30 articles dedicated to explaining Excessive […]

Parents, caregivers and educators invited to learn more about Narcolepsy in the Classroom

The Narcolepsy & Hypersomnia Support Group of the Greater Washington D.C. Area presents Narcolepsy In The Classroom?, an informative afternoon for parents, caregivers and educators. Children and […]

Breakthrough research on hypersomnia published

Narcolepsy Network Medical Advisory Board member David Rye, MD, PhD, and a team of researchers at Emory University School of Medicine have discovered that dozens of adults with […]

Narcolepsy and Cataplexy Circuitry Becomes Clearer After a Decade of Research

At the American Neurological Association annual meeting in October,  Thomas Scammell, MD, a leading sleep researcher, reviewed advances in narcolepsy and cataplexy, focusing on new research and insights […]

Golfer Nicole Jeray Swings for Sleep

LPGA golfer Nicole Jeray raises both awareness and money for narcolepsy through her “Swinging for Sleep” program.  In the mid-90’s, Nicole Jeray’s professional golf career was just […]

Musician Macy Gray lends her voice to narcolepsy awareness

In an interview with Huffington Post Live, musician Macy Gray talks about narcolepsy.  She’s joined by narcolepsy researcher Dr. Emmanuel Mignot. Thank you Macy for helping to spread the […]

2012 Public Awareness Award Winners Featured on YouTube

Our 2012 Public Awareness Award recipients Katy Scruton and Robby Roden are featured in this YouTube by filmmaker Chris Handoyo.  In the short documentary Katy and Robby […]