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Proposed Changes to NN’s Bylaws

The Board of Trustees has proposed several amendments to the Bylaws of Narcolepsy Network. We would like to share these proposed amendments, so that you understand why […]

Let Your Voice Be Heard About Your Healthcare

As Congress debates major healthcare legislation, this is an important opportunity for people with narcolepsy (PWNs) to make our voices heard. Many of us would be struggling […]

Your Support Group on Meetup

Narcolepsy Network has created a centralized website for narcolepsy support groups on Meetup.com that can be found here. What is Meetup? It is software built specifically to […]

Run for #TeamNarcolepsy

Have you ever wanted to run a marathon? Do you have narcolepsy, or know someone who does? Have you always wanted to do something big to support […]

Participants Are Needed for Clinical Trial

Flamel, part of the Avadel Pharmaceuticals, is looking for subjects to participate in their clinical trial evaluating their once nightly sodium oxybate for the treatment of Excessive […]

Help Researchers Learn More About Narcolepsy

The Nexus Narcolepsy Registry is an effort by the narcolepsy research and advocacy communities in collaboration with Jazz Pharmaceuticals that will collect de-identified data from a large […]

We Are Running the 2018 TCS New York City Marathon

Hello friends, We’re excited to announce that Narcolepsy Network has been selected as an Official Charity Partner for the 2018 TCS New York City Marathon. Narcolepsy Network […]

Patients Are Needed for Clinical Trial

Flamel, part of the Avadel Pharmaceuticals, is looking for subjects to participate in their clinical trial – REST-ON; evaluating their once nightly sodium oxybate (FT218) for the treatment of Excessive Daytime […]

Be an Advocate for Rare Disease Week

Every year, patients and caregivers from the rare disease community gather in Washington, DC to learn how to work effectively with Congress and federal agencies. Last year, […]

NORD Copay Assistance Program

Since 1987, NORD (National Organization for Rare Diseases), an organization whose mission is to identify, treat, and cure rare diseases through education, advocacy, and patient services has provided assistance […]

Blog: MRI Guidance Shows Promise in Delivering Stem Cell Therapies

This post was shared via medresearch. Working with animals, a team of scientists reports it has delivered stem cells to the brain with unprecedented precision by threading a […]

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