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Brain Donation

The study of human brain tissue is likely to yield invaluable information on the development of narcolepsy. An ongoing shortage of available brain tissue currently limits promising new research. You will leave behind a lasting legacy to the narcoleopsy community by arranging for a post-mortem brain donation TODAY with one of the following organizations:

  • Stanford University’s Center for Narcolepsy has established a Brain Donation Program for the purpose of collecting and preserving the brains of persons with narcolepsy. Brain tissue from this bank will be made available only to narcolepsy researchers. It is highly advised that information be obtained and arrangements be made in advance, since there are specific procedures which must be followed. To request an information packet, including consent forms and notices to be provided to family members and physicians, contact Mali Einen, Clinical Research Coordinator, at 650-721-7550.
  • The National Brain Bank for Narcolepsy Research (UCLA/West LA VA Medical Center) has been established in collaboration with Wallace W. Tourtellotte, M.D., Ph.D. of UCLA and the VA West Los Angeles Healthcare Center. An Advisory Committee consisting of internationally recognized narcolepsy experts evaluates requests for the use of the brains and will distribute the tissue according to the likelihood that the proposed investigations will lead to major advances in the treatment of narcolepsy. To request an information packet or for further information, contact Dr. Tourtellotte’s Brain Bank Coordinator at 310-268-3536.