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Research

Great strides have been made in recent years in understanding the cause(s) of narcolepsy, but much work remains to be done. Your participation in research studies will help researchers to unravel the mysteries that remain.

Research projects currently seeking participants:

 

Taken Xyrem in the last two years? You can participate in this study!
Have you taken Xyrem within the past two years? Harvard Medical School and Brigham and Women’s Hospital is currently conducting interviews to determine how FDA-mandated safety programs impact the prescribing and use of drugs like Xyrem.

Little is known about the impact of such programs on physicians, patients, and manufacturers, including whether they increase prescribing burdens, reduce patient access, enhance costs, or improve patients’ experiences with their illnesses. This study will seek to answer these questions. Participation will involve a 60-minute interview. Upon successful conclusion of the interview, study participants will receive a $50 Amazon gift card.

If you have received Xyrem within the past two years, you may be eligible. For more information, please contact the study principal investigator, Dr. Ameet Sarpatwari at [email protected].

Research Study is Enrolling to Evaluate Medications for Excessive Daytime Sleepiness
A voluntary research study is enrolling to evaluate medications for individuals diagnosed with Sleep Apnea or Narcolepsy. Participants must experience excessive daytime sleepiness to qualify. Five site visits will be required, weekend visits can be arranged. Qualified participants will receive up to $1700 for time and travel.

Visit www.prnsd.com or call us at 619-294-4302 to find out more and to see if you qualify.

 

Nexus Narcolepsy Registry
The Nexus Narcolepsy Registry is a collaboration of patient advocacy organizations including NN, leading narcolepsy researchers, and industry. Its goal is to track a large number of people with narcolepsy (PWNs) over several years. PWNs who volunteer to participate will complete a series of questionnaires about themselves at regular intervals. Anonymous data from the surveys will help researchers learn more about the experiences of PWNs, how narcolepsy affects their lives, and how the condition changes over time. Find more information and participate in this important research program by visiting the registry website.

 

Children with narcolepsy wanted for research study on obesity.
Help us study why children with narcolepsy often become overweight. Research doctors at Boston Children’s Hospital seek children with narcolepsy (4-18 years old). This study involves 1 visit at Boston Children’s Hospital (4-5 hours).  The study will take 1 week to complete. Participants will receive up to a $100 gift card and parking vouchers.  Call Dr. Shaw (study PI) at 617-726-1895 for more information.

Pediatric Narcolepsy Study in Texas
Do you have a child between 7-17 years old, diagnosed with narcolepsy and had a recent experience of cataplexy attack (within the last 2 months) and had a recent experience of excessive daytime sleepiness (within the last 2 months)? Are you and your child willing to travel to Houston and participate in a 60 minute face-to-face interview?  If qualified to participate, you will receive a $100.00 VISA or Amex gift card and your child will receive a $50.00 VISA or Amex gift card.

Please call 713.465.7066 or email [email protected] for more information and to schedule today.

San Diego Narcolepsy Research Study
Pacific Research Network is testing a compound (vs. placebo) for excessive daytime sleepiness in those that have narcolepsy. This is a 3-month study that requires 3 overnight stays followed by daytime testing. (3 overnights spread-out over the length of the study and can take place on weekends). Missing work and committing to the study may be hard, but your participation is appreciated. Qualified participants will receive up to $2450 for their time and travel. Eligible volunteers are diagnosed with narcolepsy and between the ages of 18 and 70. Call for more information and to see if you might qualify.  Pacific Research Network: (619) 294-4302 * www.prnsd.com

Washington, DC research study
Have you been diagnosed with narcolepsy and are between the ages of 18 and 70?  A new research study is enrolling to test an investigational medicine for excessive daytime sleepiness associated with narcolepsy. Qualified participants will receive study-related care at no cost and will be compensated for time and travel. For more information contact:
The Center for Sleep & Wake Disorders Chevy Chase, Maryland/Friendship Heights Metro
Phone: 301-654-5665; Email: [email protected]

Arizona research study
Have you been diagnosed with narcolepsy? Are you between the ages of 18 and 65? A new research study is enrolling participants to test an investigational medicine for excessive daytime sleepiness associated with narcolepsy.  Qualified participants will receive study-related care at no cost and will be compensated for time and travel.  For more information call  602-346-4747.

Researching Options in Pediatric Narcolepsy
NeuroTrials Research is conducting a new research study for excessive daytime sleepiness for children and teens with narcolepsy.  Qualified participants will be compensated for time and travel. Your child may qualify if he/she:

  • is 6-17 years of age
  • has a diagnosis of narcolepsy
  • is otherwise in good health
  • suffers from excessive sleepiness associated with narcolepsy
  • has a parent or legal guardian available to attend all study visits

Call 404-851-9934 or visit neurotrials.com for more information.

Pediatric research study looking for children in the following states: 

  • Texas
  • Oklahoma
  • Louisiana
  • New Mexico
  • Arkansas

Todd J. Swick, M.D. is conducting a new research study for excessive daytime sleepiness for children and teens with narcolepsy. Qualified participants will be compensated for time & travel. Your child may qualify if he/she:

  • Is 6-17 years of age
  • Has a diagnosis of narcolepsy
  • Suffers from excessive sleepiness associated with pediatric narcolepsy
  • Is otherwise in good health
  • Has a parent or legal guardian available to attend all study visits

Please call 713.465.7066 for more information.

 For more information on current clinical trials visit the National Institutes of Health’s clinical trials website.

 

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