2 replies to this topic

[Hank]

Here are some studies I have found helpful.

[Hank]

This is a helpful web site for checking the interactions between multiple medications

http://reference.med...eractionchecker


A medical explanation of Narcolepsy

http://www.primaryps...?articleid=1951



“A Pilot Study on the Effectiveness of Sodium Oxybate on Sleep Architecture and Daytime alertness in Narcolepsy”


http://www.journalsl...cles/270708.pdf



http://everythingnar...om/view/classic



“The Impact of Narcolepsy and It’s Treatment”

http://www.touchneur...an-study?page=0,3


http://www.cnsspectr...?articleid=2815

http://www.sanp.ch/p...2011-05-049.PDF



Circa 1944- Narcolepsy as a Type of Response to Emotional Conflict

This is helpful to see how far understanding N and C have come- this was cutting edge theory in 1944.

http://www.psychosom.../3/211.abstract

[DeathRabbit]

It always seems like there's a tough line we have to walk. If you are really passive with doctors, they'll just do the bare minimum and no new treatments or diagnoses will ever be explored. But you also don't want to give too much push back and be a WebMD self-diagnosing patient either. He who treats himself has an idiot for a doctor and all that. Usually if I and a doctor disagree, I give him the benefit of the doubt for a bit. Then, if his ideas don't lead anywhere, I'll start to push back with more of my own. I remember my PCP from way back when, after he ran out of ideas, he just sort of gave up. He was like, "well, we've tested for everything I know and come up empty, and your symptoms are vague, so I don't know what to tell ya." IE: He thought I was making crap up.