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Cataplexy??


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#1 Sabrinab116

Sabrinab116

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Posted 01 February 2012 - 10:20 AM

Okay so I was diagnosed with Narcolepsy without Cataplexy but I'm not sure if this is correct anymore....

It all started when I was walking and my knees would buckle that happened a few times and now I notice when i'm really tired my head feels heavy like its hard to keep up and it just wants to fall over, and my neck muscles ache when that happens.

Then I started to notice in school at random times I would drop my pencil when I was writing. Well what happened last night leads me to the fact that I don't think I'm clumsy anymore that it might just be my worst fear...Cataplexy!

Well just the other night I was standing in my living room holding on to a heavy coke glass and I dropped it but I didn't realize I had let go until the glass made impact with the top of my foot and I just dropped to the floor and started holding my leg, my mom watched the whole thing and came running over to me.
The top of my foot was swelled so my mom being a nurse propped it on a pillow and put ice on it, well long story short I made an unwanted visited to my local hospital. And I remember that right after my incident I felt so tired that I didn't even want to go to the ER all I wanted to do was sleep.

I talked to my doctor at my last visit about the way my head felt and my knees buckling and he just raised my medication dosage and proscribed me with Nuvigil well when I tried to get the script filled the pharmacist told my mom she was not comfortable with me taking it because Methylphenidate has severe reactions when mixed with Nuvigil and teens are more prone to the severe reactions.

I'm not sure what to think anymore, Could this be Cataplexy?? Maybe I need a different doctor because I feel I'm not getting the treatment I need and every time I try to talk to him I get a whatever attitude like he don't care.

Any information or help is greatly appreciated (: