Was wondering if this could be mild cataplexy? If I am woke up suddenly or the phone rings after I have just fallen asleep, anything like that, I get full body "jitters". feels like tremmors all over. My hubby can even feel it if he puts his hand on me. It is weird. And the dream hallucinations...could it be the alarm going off in the background and you are dreaming of "what is that noise, someone shut it off". Or hearing the TV with the sunday morning church service on and dreaming of being in church and singing hymns. Just new to all this and wondering what is normal and what is not? Since I thought most of my symptoms everyone felt and they were just a normal thing. Come to find out after asking questions to those around me, I am a mess, huh?
1 reply to this topic
Posted 29 January 2008 - 05:12 AM
Ok, so from what I can figure out, what you're describing (not the tremmors, but the hearing stuff, hallucinations, etc.) isn't necessarily cat., but it is one of the major symptom for N. I do the exact same things, it's gotten worse, you feel like you're going crazy and you don't want to tell anyone because you sound like you're nuts!! Basically the main description of cataplexy is "paralysis", when first dozing off, first waking up, when your body kinda gives out when you hear something funny, something emotional happens, something scares or startles you, etc. I thought I was just some weirdo that found things just too funny since when something is really funny to me I can't stay on my feet, I drop anything I'm holding and even though I'm laughing the whole time, my jaw just won't work and I drool on myself. Sounds rediculous, huh?!? But apparently those are symptoms of cat., I don't know about the drooling thing, but since I can't control my mouth I guess I really don't have a choice. From what I understand of the hearing things like noises and you just can't turn it off, or no one else will, or if you've ever answered the phone, but it's still ringing and you can't figure out why until you realize you're asleep; that all has to do with you being in REM (or so I'm told) and cataplexy actually keeps you from getting out of bed to answer the phone, or getting up and walking around since you're asleep. And as for the jitters, that is absolutely crazy!! I have had those since I can remember, especially if I've just dozed off, it's like someone just injected me with a huge shot of addrenaline that lasts for just a little while (1-10 mins.), you shake all over and your heart is going crazy. I have yet to find out what that is, I just thought I was scared awake or something, so it's really interesting that someone else with N. has the same thing going on!! Well, keep me posted if you find out anything about it, and I will let you know if I can rangle up some answers as well!! Good luck and I hope I've helped a little. I know how overwhelming it can be when first getting into all this, and how relieved you are knowing that there is an answer for the years of confusion!!