Hi so followingon from my last post, about having a long term sleep problem.. saw the sleep specialist for an intial consultaiton.. after about an hour appointment he suggested it vcould be Idiopathic hypersomnia or narcolepsy...but that I would have to go off my meds and wait a week or two and then he was away for 3 weeks... but I have an appointment for the 23rd of April for a review to see if being off meds makes any difference, If I am still exhausted he said we will make a time for the slepe test and nap test. He said my sleep and symptoms were definitely abnormal though from what ive said.
I had a horrible nights sleep last night, fell asleep at 9.30 dreamt till 3am woke up well asleep a few mintues later then woke up again at 4.30am wide awake. lay there for 45mins finally getting up, drank water, walked around, sat and watched boring infomaercials on tv - finally went back to bed and fell asleep at 6am dreamt again until 7.30am my cat woke me up, fell asleep again, dreamt till 10.15am finally managing to get up..so Im extra tired today, I aslo reduced my meds last night, I dont know if that means I would sleep more or less.
Just reading more on the internet about various forms of N related symptoms like cataplexy, memory troubles etc
I had a few questions I wanted to put out there, I have always been, and still am extremely clumsy and forgetful...
My mum used to get extremely frustrated with me, as I'd come home from school, and tell her I'd lost my umbrella, watch, lunchbox, pencilcase etc for example I lost 2 watches every year or two in elementary school and in senior school 4-5 watches on avaerge every year...I also forgot bigger things such as forgetting to bring home, or bring with me (more often thasn not) my violin on days when I needed it, sport uniform about every third lesson etc... My memory got a lot better for a while but seems to be going down hill again...
More impoirtanantly, also a long term problem that has gotten worse, my clumsiness! I used to trip up stairs, down stairs, and fall over my own feet a lot as a kid, now I just fall over my feet. But there have been new things over the past 5 years or so... My boyfriend says "Babe, watch out! you must be in your own little world" as I seem to be oblivious to cars, and in crowds, I repeatedly walk into, infront of people/objects and not notice, until my partner grabs me by the hand and pulls me back stops me, and tells me to be more observant/careful....I usually tell him off becuase I dont believe that ive done anything. (same with my mum when she says, ar e you drunk? your slurring your words.." I hardly ever drink and only two drinks at most.... so.. its not that..but again dont notice)
Perhaps the most promenant thing I notice, is no matter how much I try and focus on my hands, (have also tried relaxing and not focusing) and not dropping, knocking things...it seems im cursed,...I dont always loose control completely but I feel a strong weakness and tingling in my hands, wrist, sometime whole arm... sometimes (the tingling/weakness and sometimes dizziness seems to spread past my arm to my whole body and I will generally feel very confused, dizzy, or sleepy. I tend to drop objects (especially small objects) and have trouble e.g stacking plates, cuttlery, or carrying lots of things (trouible wityh balance) I get very frustrated after the third time of trying to put a knife in the drying wrack cuttlery..thing..and dropping it instead in the sink....Also..and I *dont* understrand how this happens.... but if I put an object down in a procarious place... I usually remember its there, but somehow wihtin minutes of putting it there and trying not to knock it over, ive e.g moved my arm, hand, lost balence and accidently knocked a glass and its smashed, or (most frequently - at least 2 times a week) dropped food, spilt water/knocked over a cup
It happened ...the tingliness, strong confusion, weakness, and diziness about 15 minutes ago.... I sat for 5 minutes thought I was okay, and tried to come here to type here on this forum and ask questions... my fingers had a horrible time hitting the right letters, and I was stopping mid sentence, as what I was going to type dissapeared ...im still struggling a lot with confusion right now... how long does this usually last? its frustrating...difficult to do anything, nd exhausting! I wasnt aware of an emotion....but might have been feeling anxious becuase of reduced meds, and more-than-usual lack of sleep?...
I had some more questions...but I cant remember them right now... oops! . I will post my other question when I think of it, and try not to post so many questions that I take over the entire forum heh sorry just lots of things and need someone advice.
