My 50mg Vyvanse and 20 Dex booster and coffee helped greatly for 7 weeks with the fatigue, but also my apathy. Ugh now it's like I took a sugar pill. I had been taking at least one day off, but found with Vyvanse the half life is so long it has a build up effect. So taking the weekend off would take another 4 days for it to work correctly again. This time I used it for 11 days without an issue and the last 5 have been useless.
Is there anyone else that is apathetic, unmotivated, loses interest in things and has narcolepsy?
Does anyone have any advice for tolerance or if they switch between stims and Provigil, ect?
I am on an AD Pristiq which was amazing for 2 months, but I am back to my old self of being flat. I have tried other ADs, actually 10.
That being said, I think it helps to round robin the stimulants, by changing frequently which drug you take. As far as the anti-depressants go, I don't really know what to say. I never could really tell that they did much for my mood and long term Paxil usage effed me up pretty good for a while. I think it's possible it even caused or contributed to my narcolepsy, as SSRI discontinuation syndrome has caused an N like condition that has sometimes lasted for years, due to a semi-permanent REM rebound. But they can also do good things for your sleep architecture whilst on them. Maybe try TCA instead of the SNRI/SSRI type anti-depressant. I suppose you can ratchet up the dose of Pristiq, but I've become more of a fan of switching, rather than than just throwing more of the same at a problem. Finally, you could try an anti-convulsant. I haven't seen anywhere on the internet where it's been used on N/IH, but lamictal xr has done wonders for me. And don't forget that even normal people go through ups and downs. You have to find your own path to happiness, N/IH notwithstanding. The disease just unfortunately makes it hard to distinguish between symptoms or if you are actually doing something wrong in your life.
