I hope a message board monitor or someone at NN might catch this. I beleive the polysomnography test concept has a small inherant loophole as a diagnostic indicator of Narcolepsy. It can also be photosensitive Epilepsy.
I'm not a doctor, but I think sometimes that's a good thing (can't see the forest for the trees effect!). Since the test has you awake in the presence of strong artificial lighting, this is stimulating the occicpital lobe epilepsy patient enough to keep their brainwave noise up. Then they turn off the lights in an artificially completely dark room. This is sensory deprivation at it's best, which drops the visual input to zero, and so goes the brainwave noise. Bam!, you finally get some rare total brain peace, and fall asleep within a few minutes, much faster than you would in a dimly lit household bedroom. And you get diagnosed narcoleptic. It's repeatable as often as you like, I can do it right now at home with blacked-out goggles, even while on Ritalin!
We lost power in New Orleans for six days during Hurricane Issac, I felt great the whole time. Now I know why, no artificial light of any kind!
I fully beleive that I've been misdiagnosed all these years. The EDS really was the result of fighting back the non-stop disorientation and confusion (seizure symptoms) I dealt with every day. I never really felt tired if I woke in the middle of the night, unless I read for a while or watched tv. But THAT involves visual stimulation which wore me out again! So the only relief was turning off the lights (who sleeps with the lights on?) and napping! But for me, I think the sleeping had nothing to do with it.
I will know for sure If I can ever get this dammed visual EEG scheduled, but I believe I've had a photosensitivity disorder for fourteen years, not narcolepsy. And since Topamax has tremendously reduced the effect, it's probably occipital lobe epilepsy.