Some maybe have already read my story. Some maybe not. I will try and keep this quick.
Not working now to due to my EDS, which I have had for about 12 years. Same symptoms as everybody, but finally after a move for my finace I realized I needed to take the time to figure out what was causing it. I guess when I was young I thought 'oh it's just me.' Every doctor I went to would day 'oh you have mono or do you have a B12 shot?' Finally I made my presence known when I turned 31. Same stuff everyone goes through: primary care does a blood test, psychiatrist, then an endocrinologist, then a rheumatologist, then allergies, then a PSG, and now a MSLT which is scheduled in 2 weeks.
During this period I was seeing a psychiatrist for depression. I have always had some sort of depression. The meds make me rather apathetic, but the low symptoms are controlled. This time, however, after we moved I did my research and found someone with great ratings in the professional and patient market. She mentioned ADHD. Hmmm, funny I have those symptoms. Once I was diagnosed 2 months ago I spent my days obsessively researching about the medications and disease. Learning I probably have these symptoms from something else, Narcolepsy or IH, I started reviewing medications.
Even for people without fatigue, many people with ADHD have discovered a tolerance. That's how I learned about Memantine. It's the concept of using an NMDA antagonist for cross up regulation. You will see a lot of information on the web for 'druggies' trying to reverse their tolerance or control it. My research has been on maintaining it for individuals who need it, ADHD or narcoleptics.
My doctor prescribes it for these reasons and will be something I try down the road, when my diagnosis is clear.
I haven't seen anyone discussing it here and wondered why. It seems, it would be the most beneficial for people like us.
