In Order To Be Diagnosed With Narcolepsy???
Posted 30 December 2012 - 04:53 AM
Posted 30 December 2012 - 06:41 PM
from talks with my neurologist it's not how many times you fall asleep or under 5 mins but that you fall asleep abnormally quick and how quickly you enter REM. It's nothing you can control so don't worry about it. Most of the time the next day you're in an insanely boring situation anyways so I'm sure a few healthy individuals would sleep as well
just try and relax and let the doctors evaluate you.
The truth is you may not have narcolepsy. It could be another neurological or physical condition and you really don't want to try and fit a diagnosis hoping for a cure as it's entirely possible to be misdiagnosed. Try and stay as normal as possible the day of the test. Don't worry about the results just hang out and watch some TV. If you have narcolepsy/cataplexy odds are a neurologist will eventually diagnose you. It may take time but the symptoms are going to show eventually. I had 2 sleep studies before being given an MSLT and had to do another MSLT because on my first one I had a bad sleep paralysis episode that freaked me out and my blood pressure went through the roof and kept me up all night. It takes time.
BTW: the best thing you could be doing right now is keeping a sleep/cataplexy diary notating everything you can to show your dr.
Posted 30 December 2012 - 06:49 PM
Posted 01 January 2013 - 01:30 AM
Let me tell you what my neurologist/sleep specialist said this time.
I slept 7 or 8 hours on the PSG (don't remember how long) with 92% sleep efficiency.
For the MSLT, I apparently fell asleep for every nap, with an average sleep latency (or time-to-sleep) of 8 minutes, and 2 sleep-onset REM periods. This put me, according to the neurologist, right at the borderline for a narcolepsy diagnosis. I don't have cataplexy to tip the scales. However, the neurologist said, in his own words, "After sleeping as long as you did on the PSG, and with that sleep efficiency rating, you shouldn't have been able to fall asleep at all for any of the naps. No one should, if they don't have narcolepsy."
So, yes, test results matter. But so does how your doctor interprets them. The best thing you can do is not worry about it. I went in for the sleep study a little worried that I wouldn't be able to sleep--I never can in a strange bed, like at hotels or friends' houses--but also with a sense of relief that I was on the way to understanding just what was happening. I did some minor research about the PSG and MSLT, and about various sleep disorders, including narcolepsy, but I didn't let myself form an opinion about what the diagnosis would be. I just kept telling myself that this was the first step to finding out what was happening. As a result, I was fairly relaxed about the whole thing. I think that's the best way you can possibly approach it. If you worry too much about the results and whether or not you'll get the "right" diagnosis, you'll affect those same results and, therefore, the diagnosis. So, try not to worry about it. Try to think of it, instead, as the first step to knowing what's wrong and how to fix it. Just take a step back, take a deep breath, and let the worry go.
Easier said than done, I know, but still the best thing you can do for yourself.