9 replies to this topic

[novacat]

So thankfully when I take my medications and get enough sleep, I feel so much better than I did a few months ago when I was first trying to adjust everything when I got diagnosed. But, now I am at college and I have to worst neighbors who keep me awake far later than I can be(2am on a schoolnight, when I have 8am chemistry lab woo!) and I was wondering does anyone else get really really ill when they don't get enough sleep? The third day of school my ex roommate kept me awake very late and I probably got 5 hours of sleep. Then I was on my feet for about 5 hours the next day and by lunch time I was dizzy, vomiting, and had a headache. This has happened before to me. My sleep doctor said I probably have some autonomic nervous system involvement with my narcolepsy since orexin controls not only sleep but also appetite, heartrate, and temperature.

Oh those days I dont get enough sleep my body's temperature is wacko. Like it could be 70 degrees outside and i am freezing, people notice it too if they touch my hands they feel like icicles. and i also get overheated. I also have POTS so its just a big mix of symptoms. I wish my neighbors were quieter though. It's really awful, and I have talked to the RA. I already had to move once because my roommate would gab on her phone until after midnight and keep lights on and blast music without headphones late. and i tried to explain to her that i need my sleep because i have a 'heart condition' (cant say i have narco because then shed know i was on adderall) and that i needed to move to a private room so that i could get enough sleep because i did not want to enforce my sleep schedule on her and she got angry with me! it was awful, she had her friends harass me the whole last night i was there. oh and shes a nursing student. LOL great empathy, compassion, and understanding. shes awful. But anyways my new RA told me that i could move or deal with my neighbors who break quiet hours every night. quiet hours start at 8 but im not even asking for that, im asking that past like 11pm people dont scream and bang on doors and run up and down the hallways on school nights. but i was told to move. even though im just asking the RA to do her job and enforce the rules that everyone agreed to in the housing contract. im ready to march straight down to the disability office and tell my dear counselor extraordinaire that this is going on,because by not following the rules, my neighbor is really making me physically sick which is really not fair or reasonable. especially since i explained that i have a health problem too! sheesh!

other than res life, this school is amazingly accommodating for my disability, the health office, disability office, and my academic advisor are all teaming together to get me through school. and we have this great club called leVel for students of all abilities. its absolutely great.
oh wow that was a tangent. sorryguysimnew!

-mk

[DeathRabbit]

So thankfully when I take my medications and get enough sleep, I feel so much better than I did a few months ago when I was first trying to adjust everything when I got diagnosed. But, now I am at college and I have to worst neighbors who keep me awake far later than I can be(2am on a schoolnight, when I have 8am chemistry lab woo!) and I was wondering does anyone else get really really ill when they don't get enough sleep? The third day of school my ex roommate kept me awake very late and I probably got 5 hours of sleep. Then I was on my feet for about 5 hours the next day and by lunch time I was dizzy, vomiting, and had a headache. This has happened before to me. My sleep doctor said I probably have some autonomic nervous system involvement with my narcolepsy since orexin controls not only sleep but also appetite, heartrate, and temperature.

Oh those days I dont get enough sleep my body's temperature is wacko. Like it could be 70 degrees outside and i am freezing, people notice it too if they touch my hands they feel like icicles. and i also get overheated. I also have POTS so its just a big mix of symptoms. I wish my neighbors were quieter though. It's really awful, and I have talked to the RA. I already had to move once because my roommate would gab on her phone until after midnight and keep lights on and blast music without headphones late. and i tried to explain to her that i need my sleep because i have a 'heart condition' (cant say i have narco because then shed know i was on adderall) and that i needed to move to a private room so that i could get enough sleep because i did not want to enforce my sleep schedule on her and she got angry with me! it was awful, she had her friends harass me the whole last night i was there. oh and shes a nursing student. LOL great empathy, compassion, and understanding. shes awful. But anyways my new RA told me that i could move or deal with my neighbors who break quiet hours every night. quiet hours start at 8 but im not even asking for that, im asking that past like 11pm people dont scream and bang on doors and run up and down the hallways on school nights. but i was told to move. even though im just asking the RA to do her job and enforce the rules that everyone agreed to in the housing contract. im ready to march straight down to the disability office and tell my dear counselor extraordinaire that this is going on,because by not following the rules, my neighbor is really making me physically sick which is really not fair or reasonable. especially since i explained that i have a health problem too! sheesh!

other than res life, this school is amazingly accommodating for my disability, the health office, disability office, and my academic advisor are all teaming together to get me through school. and we have this great club called leVel for students of all abilities. its absolutely great.
oh wow that was a tangent. sorryguysimnew!

-mk

Oh crud, you have POTS and the Narc? You poor thing. I would guess the lack of sleep most likely compounds the dysautnomia to some degree, but I can say that if I get a critically low amount of sleep I have lots of stomach cramps and heartburn. Also, if I have to fight sleepiness for an extended period of time, I will get headaches with a tinge of nausea and sometimes heart palpitations as well. On the other hand, I have a friend who has POTS and that alone has manifested all the symptoms you describe as well. Kudos to you for soldiering on because she basically dropped out of society and just lives with her parents and smokes pot all day. That's amazing that you are holding up a college career! Props to you! I don't know if it's in the budget, but you might wish to find accommodations off campus. Dorm walls are usually paper thin and my roommates would often wake me, even if they were being well within the parameters of courteous behavior.

[novacat]

Oh crud, you have POTS and the Narc? You poor thing. I would guess the lack of sleep most likely compounds the dysautnomia to some degree, but I can say that if I get a critically low amount of sleep I have lots of stomach cramps and heartburn. Also, if I have to fight sleepiness for an extended period of time, I will get headaches with a tinge of nausea and sometimes heart palpitations as well. On the other hand, I have a friend who has POTS and that alone has manifested all the symptoms you describe as well. Kudos to you for soldiering on because she basically dropped out of society and just lives with her parents and smokes pot all day. That's amazing that you are holding up a college career! Props to you! I don't know if it's in the budget, but you might wish to find accommodations off campus. Dorm walls are usually paper thin and my roommates would often wake me, even if they were being well within the parameters of courteous behavior.

I'm definitely considering moving off next year, people just don't seem to understand. I've spoken to my RA multiple times about enforcing quiet hours, but no one is doing their job. I may just go to their supervisor because really if the rules were enforced I would be fine; and I'll play the disability card if I must. The POTS definitely complicates my narc. If it's a bad day I can't go from sitting to standing without dizzyness and my vision starts to go, among all the other symptoms I have. it's a bummer man, but at least its better than before I had medicine! Gotta think of that. And I really am trying to stay positive, I'm in a really good nursing school getting my BSN, and the school has been so accommodating with my schedule and everything. This school is really so good taking care of me, the only annoying thing is my neighbors!!! ahh they're the worst. They're making me miss class, and making me feel sick. It's so annoying. like right now, its a school night, theyre screaming, slamming doors, and giggling. theres probably like 6 people in the single next to mine.

[Megssosleepy]

I'm definitely considering moving off next year, people just don't seem to understand. I've spoken to my RA multiple times about enforcing quiet hours, but no one is doing their job. I may just go to their supervisor because really if the rules were enforced I would be fine; and I'll play the disability card if I must. The POTS definitely complicates my narc. If it's a bad day I can't go from sitting to standing without dizzyness and my vision starts to go, among all the other symptoms I have. it's a bummer man, but at least its better than before I had medicine! Gotta think of that. And I really am trying to stay positive, I'm in a really good nursing school getting my BSN, and the school has been so accommodating with my schedule and everything. This school is really so good taking care of me, the only annoying thing is my neighbors!!! ahh they're the worst. They're making me miss class, and making me feel sick. It's so annoying. like right now, its a school night, theyre screaming, slamming doors, and giggling. theres probably like 6 people in the single next to mine.

I read someone else suggest hanging blankets and/or carpets on the walls to obsorb the noise. Also if you get a humidifier those make really nice loud steady white noise (I got one when I had a noisy roomie)What worked best on the super noisy nights was to run the white noise and get the wax ear plugs (they shape to your ears, and stay in better) I make sure I can hear the white noise through the ear plugs tho... cannot have silence or I'll get SP w/ HH.
I think someone else also suggested if you have bunk beads take the bottom and turn it into a fort... helping to drown out noise as well!
Good Luck!!

[DeathRabbit]

I read someone else suggest hanging blankets and/or carpets on the walls to obsorb the noise. Also if you get a humidifier those make really nice loud steady white noise (I got one when I had a noisy roomie)What worked best on the super noisy nights was to run the white noise and get the wax ear plugs (they shape to your ears, and stay in better) I make sure I can hear the white noise through the ear plugs tho... cannot have silence or I'll get SP w/ HH.
I think someone else also suggested if you have bunk beads take the bottom and turn it into a fort... helping to drown out noise as well!
Good Luck!!

Oh yeah, the white noise thing is a good idea. I actually have an app for my Android phone that is called White Noise and it will generate a whole bunch of other sounds too. It really seems to help me when my roommate is up and moving around; I don't get woken up as often with that thing running.

Google Store
Apple Store

[novacat]

Oh yeah, the white noise thing is a good idea. I actually have an app for my Android phone that is called White Noise and it will generate a whole bunch of other sounds too. It really seems to help me when my roommate is up and moving around; I don't get woken up as often with that thing running.

Google Store
Apple Store

That's actually great! My mom ordered me a white noise machine earlier this week so hopefully itll work in helping me sleep through the noise!

[Megssosleepy]

That's actually great! My mom ordered me a white noise machine earlier this week so hopefully itll work in helping me sleep through the noise!

Just hope its a loud one! I have never been able to sleep with out white noise! I have one on my iphone that makes a bunch of noises its nice when I need a nap at work... I put on the ocean and some birds chirping lol

[drago]

quiet hours start at 8 but im not even asking for that, im asking that past like 11pm people dont scream and bang on doors and run up and down the hallways on school nights. but i was told to move. even though im just asking the RA to do her job and enforce the rules that everyone agreed to in the housing contract. im ready to march straight down to the disability office and tell my dear counselor extraordinaire that this is going on,because by not following the rules, my neighbor is really making me physically sick which is really not fair or reasonable. especially since i explained that i have a health problem too! sheesh!

I'm not sure how your college does things, but I know how my college did them: We had floor leaders (SAs we called them, but they're RAs basically). The floor leaders lived on the floor, usually somewhere in the middle of the floor. On the weekends, one would be 'on call', and would also round on the halls - meaning they'd actually check for everything to be OK.

The SAs mediated any conflict, but they also dealt with rule violation. If noise happened after quiet hours (10pm on weeknights, 2am on weekend nights) the SA was suppose to ask them to be quiet. YES - EVEN IF NO ONE COMPLAINED ABOUT THE NOISE! I know this because my upstairs neighbors my first year would play music (with heavy base) LOUDLY. As I was on the top bunk, my tenacious ability to filter out annoying sounds of all kinds failed me, because the physical base beat would actually shake my body. Uncool. It seemed like every night at 10:05pm I had to ask them to turn off their frickin' music - EVERY TIME - because I went to bed at 10pm and they would "forget" about the quiet hours.

Finally I got my SA involved, and she got their SA involved, and it stopped. But it was a thoroughly lame set of weeks!

The SA from upstairs got in trouble because it was her job to enforce quiet hours -- and she never did. And she was definitely THERE - it's not like she had a late night class or anything. She just didn't do her job. The Hall President (also a student) reprimanded her and she stepped up her game.

So, do RAs have to enforce a quiet hour? If not, shouldn't YOUR request be a good enough reason to get her/him on board?

I also think it's important to ask this question because I know how much it sucks to be "THAT PERSON" -- being one of the few people who craved (and needed, although I did not know I had narcolepsy in college) a solid sleep schedule / good sleep hygiene, I went to sleep at 10pm every night. I would bug my neighbors, upstairs AND downstairs, if they did anything that woke me up. I constantly badgered pretty much everyone all the time about this. I know I was annoying -- but then I found out that that's because I was doing SOMEONE ELSE'S JOB!

It's unfair to expect YOU to single-handedly remind your neighbors every night that YOU need sleep. It's unfair for the college to make YOU in "THAT PERSON" among your peers -- also it's unfair to make you spout your disability to your peers to get them to shut up. Even a person without disability needs a good night's sleep! :-p

Hope this resolves for you!
drago

[novacat]

I'm not sure how your college does things, but I know how my college did them: We had floor leaders (SAs we called them, but they're RAs basically). The floor leaders lived on the floor, usually somewhere in the middle of the floor. On the weekends, one would be 'on call', and would also round on the halls - meaning they'd actually check for everything to be OK.

The SAs mediated any conflict, but they also dealt with rule violation. If noise happened after quiet hours (10pm on weeknights, 2am on weekend nights) the SA was suppose to ask them to be quiet. YES - EVEN IF NO ONE COMPLAINED ABOUT THE NOISE! I know this because my upstairs neighbors my first year would play music (with heavy base) LOUDLY. As I was on the top bunk, my tenacious ability to filter out annoying sounds of all kinds failed me, because the physical base beat would actually shake my body. Uncool. It seemed like every night at 10:05pm I had to ask them to turn off their frickin' music - EVERY TIME - because I went to bed at 10pm and they would "forget" about the quiet hours.

Finally I got my SA involved, and she got their SA involved, and it stopped. But it was a thoroughly lame set of weeks!

The SA from upstairs got in trouble because it was her job to enforce quiet hours -- and she never did. And she was definitely THERE - it's not like she had a late night class or anything. She just didn't do her job. The Hall President (also a student) reprimanded her and she stepped up her game.

So, do RAs have to enforce a quiet hour? If not, shouldn't YOUR request be a good enough reason to get her/him on board?

I also think it's important to ask this question because I know how much it sucks to be "THAT PERSON" -- being one of the few people who craved (and needed, although I did not know I had narcolepsy in college) a solid sleep schedule / good sleep hygiene, I went to sleep at 10pm every night. I would bug my neighbors, upstairs AND downstairs, if they did anything that woke me up. I constantly badgered pretty much everyone all the time about this. I know I was annoying -- but then I found out that that's because I was doing SOMEONE ELSE'S JOB!

It's unfair to expect YOU to single-handedly remind your neighbors every night that YOU need sleep. It's unfair for the college to make YOU in "THAT PERSON" among your peers -- also it's unfair to make you spout your disability to your peers to get them to shut up. Even a person without disability needs a good night's sleep! :-p

Hope this resolves for you!
drago

Those are the same rules my school has! except our quiet hours start at 8pm on weeknights and i think 11 on weekends. I keep complaining to my RA but I know she has like a supervisor RA so my next step is going to be talking with her. Really, my RA just isn't doing her job. They are supposed to patrol but they just sit in their rooms and wait for you to come to them. They're getting paid to be an RA so its really annoying that they're not doing their job. Thank you for your advice! I'm glad to hear that you were able to resolve the problem in a similar situation, that's so encouraging!

[Sisu]

If I don't sleep I don't go to work. That's the rule, because if I do go to work after sleeping, I invariably end up fainting and going to the hospital. So that rule came into being.



You're so not the only one.