Well, I started July 26th...doing the 2.25 x 2, 3.0 x 2, 3.75 x 2, 4.5 x 2 for the first 4 weeks...and then I continued at 4.5 x 2 into September. Since then, I've been playing around a bit...I backed down to 3.75 and going up in slower .25 increments. Because I dropped a lot of weight...not that it was bad, just that it was fast. And, worried that if it continued then it would be bad.
3.75 x 2 doesn't seem to be as good sleep wise, and I don't feel as great in the morning....and it was still a mix on appetite and weight loss. My digestion seems to have changed....in some ways better, in other ways worse. But, my taste perception has gotten pretty bad. Things I used to enjoy, seem to have no taste so I'll have trouble finishing off what I used be able to. Though it hasn't altered my taste for sweets, so still have to resist the grazing of junkfood before bedtime. Hard because I was well stocked before I started Xyrem, and grazing right up to bed time was normal. Have jumped the gun on raising things now and then, and while I get a good night of sleep....I certainly notice it when I'm forcing myself to eat during the day.
Though I'm wondering if it might not actually be my reflux problem that is making these problems from the Xyrem. It definitely feels like there's an extra film in my mouth when I brush in the morning. Probably doesn't help that I'm taking my dose laying down in bed....but some times the Xyrem hits me like a ton of bricks right away. Other times I'll be laying there for an hour+ waiting for it to work. First time that it was taking a while...I got up and worked for an hour or so....until it hit hard....almost didn't make it back to bed. So, now I just lay in bed, wondering when its going to start working. And, then wondering when my alarm goes, how much of the time I was actually asleep...and if there was time where I only dreamed that I was still awake....a problem I had with my insomnia before Xyrem.
Guess I need to work on reimplementing some of the things I learned in therapy before. The hard part is that I used to start the process when I felt tired in the evening. Now I can easily stay up way late into the evening, to the point where there might not be enough time to get in at least 8 hours.... When I was at 4.5g, I would sometimes get ~6 hours on a single dose (though kind of fragmented at the end...and still have a pretty good day. Though it wasn't sustainable. And, it was pointless, because nobody at work noticed that I was getting in early for a change.
I'm sure I'll have nights where I'll only be taking one dose this coming weekend
Hoping I'll put on some weight too....
