17 replies to this topic

[Megssosleepy]

Okay,

So this is long overdue, and I need some input. You all give such good advise!

I made another appointment with my sleep doc. I need to find a new day time medication. I feel like I have tried them all. Ive been on Adderall 10mgX2 or 3 (as needed) for almost 3 months. Im am also taking Xyrem 3.0 & 3.75 <-- sticking with this for awhile longer. After reading a post earlier today I realized that the Addy it isn't actually helping me?!? So here's what Ive tried and why I didn't like it.

Nuvig- This was the first one I tried and had a major panic attack that last all day on it! And to top it off could not sleep that night!... tried again the next day no improvement

Adderall- 5mgX2 I thought it was okay but my heart was racing and my jaw clenching so bad that my jaw locked up! And the crash!! omg would forget to take the second dose till I was asleep at my desk.

Adderall XR- up and down down and up all day... with all the problems above

Ritalin- 5mgX3- this one was real bad... depression almost got the best of me... the thoughts that went through my head were not natural... and still have the heart racing ect.

Vivance- 20mg decided long lasting was not good for me, wanted to have control... and this stuff made my jaw 10X worse!!

Then back to adderall cuz it was the only one I could stand... but now I realize I am in a giant FOG all the time and dosent keep me awake at all. I also notice that I am more compulsive and annoyed easier.

SOOOOOOOOO What else is there?
Tips, suggestions, or even just vocab to use with my doc. I really want to get a hold of this I feel like I am slipping away again.

(itty bitty pitty party) How is it that I sleep all night long a nice 8 hours and all I think about all day is 10pm when I can go back to bed... I have homework, I have to work, I have to drive, and want to go to the gym, and just be productive... but I am so tired, I get home and fall asleep on my bedroom floor petting my puppy, if I reach for a school book out I go again... At work I am on auto-pilot <-- not working so well anymore, how many mistakes have I not caught yet!!?? This mental FOG is nasty and my glossed over eyes... I have had enough!! Urrrrrgh I cannot take this overwhelming tiredness, and now Im getting upset so my legs are starting to twitch GREAT!

Okay Im done... sorry about that... The N has gotten the best of me the past few days.

So yes any suggestions (other then gluten intolerance) would be much appreciated!!

THANK YOU IN ADVANCE!

[sleepylune]

Im so sorry to hear you're having such a hard time with your EDS still. I can't imagine how frustrating that must be to be finally sleeping so well but still be so tired all day. I don't have any real suggestions, and I've never had too much trouble with the stimulants. I tried provigil and it made my eye twitch non stop. Nuvigil didn't do anything at all. I take concerta 36mg er in the am. What I do is set my alarm for four hours after my last dose of xyrem, take my concerta, and then go back to sleep for another hour. Then I'm finally awake. I used to take ritalin 10mg twice a day (around 10am and 3pm), but now I'm down to just the 3pm dose. I don't know if any of this helps you, but I thought just hearing another person's schedule is always informative. When I first started taking stimulants I was super jittery and fidgety. I just upped my relaxation techniques to counteract the ritalin. For me, taking deep breaths, listening to music and doing arts and crafts helped to keep my hands busy while my mind calm. Again, this just worked for me personally. I never got sick on the stimulants or couldn't handle the side effects. I don't know if any of this helps, but I'm really glad you have another appt!

[Hank]

Okay,

So this is long overdue, and I need some input. You all give such good advise!

I made another appointment with my sleep doc. I need to find a new day time medication. I feel like I have tried them all. Ive been on Adderall 10mgX2 or 3 (as needed) for almost 3 months. Im am also taking Xyrem 3.0 & 3.75 <-- sticking with this for awhile longer. After reading a post earlier today I realized that the Addy it isn't actually helping me?!? So here's what Ive tried and why I didn't like it.

Nuvig- This was the first one I tried and had a major panic attack that last all day on it! And to top it off could not sleep that night!... tried again the next day no improvement

Adderall- 5mgX2 I thought it was okay but my heart was racing and my jaw clenching so bad that my jaw locked up! And the crash!! omg would forget to take the second dose till I was asleep at my desk.

Adderall XR- up and down down and up all day... with all the problems above

Ritalin- 5mgX3- this one was real bad... depression almost got the best of me... the thoughts that went through my head were not natural... and still have the heart racing ect.

Vivance- 20mg decided long lasting was not good for me, wanted to have control... and this stuff made my jaw 10X worse!!

Then back to adderall cuz it was the only one I could stand... but now I realize I am in a giant FOG all the time and dosent keep me awake at all. I also notice that I am more compulsive and annoyed easier.

SOOOOOOOOO What else is there?
Tips, suggestions, or even just vocab to use with my doc. I really want to get a hold of this I feel like I am slipping away again.

(itty bitty pitty party) How is it that I sleep all night long a nice 8 hours and all I think about all day is 10pm when I can go back to bed... I have homework, I have to work, I have to drive, and want to go to the gym, and just be productive... but I am so tired, I get home and fall asleep on my bedroom floor petting my puppy, if I reach for a school book out I go again... At work I am on auto-pilot <-- not working so well anymore, how many mistakes have I not caught yet!!?? This mental FOG is nasty and my glossed over eyes... I have had enough!! Urrrrrgh I cannot take this overwhelming tiredness, and now Im getting upset so my legs are starting to twitch GREAT!

Okay Im done... sorry about that... The N has gotten the best of me the past few days.

So yes any suggestions (other then gluten intolerance) would be much appreciated!!

THANK YOU IN ADVANCE!

Megs- what a drag. I'm so sorry. First of all, you have a lot of responsibilities- so most people would be tired out. You also have N underneath all of that so you are carrying a very heavy load. I think the fortitude it takes PWN to push on is under-recognized. You certainly have fortitude. I have told my doctors my goal is "well"- I need them to get me as close to well as possible. I settled for better in the past when I was misdiagnosed and thought it was great. I was so thankful for better that I was settling for so little. I'm glad you are meeting with your doctor to discuss options. I am meeting with my sleep doc tomorrow for similar reasons. When we have concerns, it is for good reason- we're not just complaining. Keep striving for well and give yourself all the credit you deserve for load you are carrying.

[cloudtalk]

I don't know how much advice I can give you, but it's kind of nice to hear about someone else going through similar things. I totally relate to the pity party thing. I am so grateful that I've finally been given a diagnosis that explains so much, and that I can take Xyrem, but it still sucks! I've been in college for 7 years, and probably have 3 more years to go. I want so badly to be able to be productive like a normal person, do well at my job and school and relationships, and narcolepsy makes everything so hard! And I also spend a good chunk of time trying to figure out what I can do to feel healthier. There just isn't enough time or wakefulness to do everything I need to do any given day, even though Xyrem has started to give me a few extra hours of wakefulness in the day. So it all just keeps piling up.

I'm sorry Xyrem is not working so well for you. I've tried all those stimulants in the past and they mostly made me more awake, but too shaky/jittery and uncomfortable. Nuvigil actually put me in more of a fog. Have you tried drinking coffee? Coffee doesn't have such strong effects, but helps a little bit at least. I find that drinking a couple of shots of espresso in a latte or americano works better for me than a cup of brewed coffee, and can help me get in an extra hour or so of homework/productivity. Since I've been on xyrem I've noticed that coffee has a stronger effect on me, and it can make me a bit shaky or jittery, but not nearly so bad as prescription stimulants. You might want to try one espresso shot at first if you don't already drink coffee. I know it's not a solution by any means, but every little bit helps, I guess.

Sorry if I'm not much help. But thank you (and Hank) for replying to my post the other day, it's really nice to get some reassurance from other people living with similar issues. I got a bunch of those Boost Plus nutritional shakes yesterday and I'm hoping that will help me be less shaky and maybe have more energy.

Also, I wanted to add that I've read that you should avoid too much more sodium, take a magnesium and calcium supplement, get lots of potassium (you get way more out of eating bananas, apricots, or ensure than the supplements they sell), and take a B-complex vitamin. I guess since we are getting like 75% of our daily value of sodium from xyrem it's important to make sure we get more of our other electrolytes as well. [I'm actually studying blood in my anatomy class right now, and sodium, potassium, magnesium and calcium are the four cations your blood uses in reactions throughout your body, so it kind of makes sense that you'd want to keep them in balance]. The B Complex is supposed to be good for your brain, and for a bunch of other things. I've been taking them and have no idea if they are helping or not, but it doesn't hurt. Note that magnesium acts as a stool softener and you already get some in your diet, so don't take too much of that, maybe just like an extra 33% DV.

[Megssosleepy]

Im so sorry to hear you're having such a hard time with your EDS still. I can't imagine how frustrating that must be to be finally sleeping so well but still be so tired all day. I don't have any real suggestions, and I've never had too much trouble with the stimulants. I tried provigil and it made my eye twitch non stop. Nuvigil didn't do anything at all. I take concerta 36mg er in the am. What I do is set my alarm for four hours after my last dose of xyrem, take my concerta, and then go back to sleep for another hour. Then I'm finally awake. I used to take ritalin 10mg twice a day (around 10am and 3pm), but now I'm down to just the 3pm dose. I don't know if any of this helps you, but I thought just hearing another person's schedule is always informative. When I first started taking stimulants I was super jittery and fidgety. I just upped my relaxation techniques to counteract the ritalin. For me, taking deep breaths, listening to music and doing arts and crafts helped to keep my hands busy while my mind calm. Again, this just worked for me personally. I never got sick on the stimulants or couldn't handle the side effects. I don't know if any of this helps, but I'm really glad you have another appt!

No this helps a lot. I have actually started beading again, I used to do it all the time and loved it... I found it does relax me... but the time spent on that should be spent on school lol.
I haven't tried Concerta... I will have to look it up! Thanks!!

[Megssosleepy]

I don't know how much advice I can give you, but it's kind of nice to hear about someone else going through similar things. I totally relate to the pity party thing. I am so grateful that I've finally been given a diagnosis that explains so much, and that I can take Xyrem, but it still sucks! I've been in college for 7 years, and probably have 3 more years to go. I want so badly to be able to be productive like a normal person, do well at my job and school and relationships, and narcolepsy makes everything so hard! And I also spend a good chunk of time trying to figure out what I can do to feel healthier. There just isn't enough time or wakefulness to do everything I need to do any given day, even though Xyrem has started to give me a few extra hours of wakefulness in the day. So it all just keeps piling up.

I'm sorry Xyrem is not working so well for you. I've tried all those stimulants in the past and they mostly made me more awake, but too shaky/jittery and uncomfortable. Nuvigil actually put me in more of a fog. Have you tried drinking coffee? Coffee doesn't have such strong effects, but helps a little bit at least. I find that drinking a couple of shots of espresso in a latte or americano works better for me than a cup of brewed coffee, and can help me get in an extra hour or so of homework/productivity. Since I've been on xyrem I've noticed that coffee has a stronger effect on me, and it can make me a bit shaky or jittery, but not nearly so bad as prescription stimulants. You might want to try one espresso shot at first if you don't already drink coffee. I know it's not a solution by any means, but every little bit helps, I guess.

Sorry if I'm not much help. But thank you (and Hank) for replying to my post the other day, it's really nice to get some reassurance from other people living with similar issues. I got a bunch of those Boost Plus nutritional shakes yesterday and I'm hoping that will help me be less shaky and maybe have more energy.

Funny...I read your other post before your response to mine... I think I may go back to coffee and stick with the xyrem. Don't worry about the 3 more years... Im on my 10th and am about to finish this semester!! (with a 3.8 GPA)
The N really does make everything hard. I moved back in with my parents to save for my own house, and they think I am a bum... I just dont have the energy or strength to do anything after a 9 hour day a work and school to top it off.
And oh Gosh Relationships... I could write a paper about that... If only I was DXed sooner Id prolly still have the one I am attempting to get over.
It is always nice to hear that others feel the same way... although not so much at the same time, cuz I feel bad for the other PWNs.
Have you noticed the Xyrem makes you think differently about situations? I have found I am seeing things form another perspective, and wonder if anyone else feels this way?

[cloudtalk]

Funny...I read your other post before your response to mine... I think I may go back to coffee and stick with the xyrem. Don't worry about the 3 more years... Im on my 10th and am about to finish this semester!! (with a 3.8 GPA)
The N really does make everything hard. I moved back in with my parents to save for my own house, and they think I am a bum... I just dont have the energy or strength to do anything after a 9 hour day a work and school to top it off.
And oh Gosh Relationships... I could write a paper about that... If only I was DXed sooner Id prolly still have the one I am attempting to get over.
It is always nice to hear that others feel the same way... although not so much at the same time, cuz I feel bad for the other PWNs.
Have you noticed the Xyrem makes you think differently about situations? I have found I am seeing things form another perspective, and wonder if anyone else feels this way?

I edited my comment to add some stuff about vitamins, so you should read that. Your parents know you have narcolepsy and think you're a bum, even though you work and go to school? That sucks, they should be more understanding. I totally feel like I see things differently now. I'm not really sure how to explain it, but it I'm noticing new things and feel like my brain is evolving/changing or something.

[Megssosleepy]

I edited my comment to add some stuff about vitamins, so you should read that. Your parents know you have narcolepsy and think you're a bum, even though you work and go to school? That sucks, they should be more understanding. I totally feel like I see things differently now. I'm not really sure how to explain it, but it I'm noticing new things and feel like my brain is evolving/changing or something.

You know I did go back and read the extra bit, and really thought I had just spaced out and missed it the first time... lol Somehow I also missed Hank's reply so maybe I was half spaced out!

No my parents are classic "the world revolves around me" people. I was home sick on Mon-Tue (contagious until the antibiotics kicked in)And my dad's like "your playing hookie again?" Mind you I worked from home and did school work. The only thing about this terrible infliction they even care to talk about is how much my insurance pays for my Xyrem a month. They never ask any questions or have concern and then call me a lazy bum... and I am not Lazy at all, I am very clean, and get my work done... I just yawn a lot and sometimes pass out as soon as I get home from work (I leave the house at 6:45am!)

Its interesting that what I was contemplating in a new light last night (lying awake on Xyrem) was my parents and my earliest memories... trying to connect the dots to find a reason I am the way that I am... I figured it out alright... surprisingly not what I had expected. (sorry started rambling there) A side note, my parents are not bad people and I am lucky to have them, but compassionate they are not! (although I am to them at every whine)

I drink a supplemental drink when I wake, and take a multi when I get home from work. I know I need to get healthier but its hard to force feed myself on these stimulants! I munch on dark choc cover almonds... they are great!

Do you think perhaps our brains can't get used to actually being at rest? I can't say my thinking is more clear... its just more open? I think it may have been you that said your able to heal faster? That's pretty cool.

[willow]

Okay,

So this is long overdue, and I need some input. You all give such good advise!

I made another appointment with my sleep doc. I need to find a new day time medication. I feel like I have tried them all. Ive been on Adderall 10mgX2 or 3 (as needed) for almost 3 months. Im am also taking Xyrem 3.0 & 3.75 <-- sticking with this for awhile longer. After reading a post earlier today I realized that the Addy it isn't actually helping me?!? So here's what Ive tried and why I didn't like it.

Nuvig- This was the first one I tried and had a major panic attack that last all day on it! And to top it off could not sleep that night!... tried again the next day no improvement

Adderall- 5mgX2 I thought it was okay but my heart was racing and my jaw clenching so bad that my jaw locked up! And the crash!! omg would forget to take the second dose till I was asleep at my desk.

Adderall XR- up and down down and up all day... with all the problems above

Ritalin- 5mgX3- this one was real bad... depression almost got the best of me... the thoughts that went through my head were not natural... and still have the heart racing ect.

Vivance- 20mg decided long lasting was not good for me, wanted to have control... and this stuff made my jaw 10X worse!!

Then back to adderall cuz it was the only one I could stand... but now I realize I am in a giant FOG all the time and dosent keep me awake at all. I also notice that I am more compulsive and annoyed easier.

SOOOOOOOOO What else is there?
Tips, suggestions, or even just vocab to use with my doc. I really want to get a hold of this I feel like I am slipping away again.

(itty bitty pitty party) How is it that I sleep all night long a nice 8 hours and all I think about all day is 10pm when I can go back to bed... I have homework, I have to work, I have to drive, and want to go to the gym, and just be productive... but I am so tired, I get home and fall asleep on my bedroom floor petting my puppy, if I reach for a school book out I go again... At work I am on auto-pilot <-- not working so well anymore, how many mistakes have I not caught yet!!?? This mental FOG is nasty and my glossed over eyes... I have had enough!! Urrrrrgh I cannot take this overwhelming tiredness, and now Im getting upset so my legs are starting to twitch GREAT!

Okay Im done... sorry about that... The N has gotten the best of me the past few days.

So yes any suggestions (other then gluten intolerance) would be much appreciated!!

THANK YOU IN ADVANCE!

I don't know if this will help or not. I take dexedrine er (10mg.) twice a day, and dextostat (5mg.) three times a day for breakthrough. This after years of trying everything imaginable, I went through a lot to get to where I am now. I also set my alarm for an hour before I need to get up, take it and go back to sleep. That really helps! But here's the kicker, I have to take drug holidays because dexedrine is a DI agonist. I tried ritalin and the experience was awful, so I did some research and found a drug called Focalin. It's the left handed isomer of ritalin so you don't get the side effects that ritalin gives. I guess what I'm saying is that focalin is a cleaner version of ritalin because 50% of ritalin doesn't do what you want it to do, it does what's called non-specific binding and that's what gives the side effects. I've been taking focalin for 4 years now and while it isn't perfect, it's worlds ahead of where I was. Willow

[Megssosleepy]

I don't know if this will help or not. I take dexedrine er (10mg.) twice a day, and dextostat (5mg.) three times a day for breakthrough. This after years of trying everything imaginable, I went through a lot to get to where I am now. I also set my alarm for an hour before I need to get up, take it and go back to sleep. That really helps! But here's the kicker, I have to take drug holidays because dexedrine is a DI agonist. I tried ritalin and the experience was awful, so I did some research and found a drug called Focalin. It's the left handed isomer of ritalin so you don't get the side effects that ritalin gives. I guess what I'm saying is that focalin is a cleaner version of ritalin because 50% of ritalin doesn't do what you want it to do, it does what's called non-specific binding and that's what gives the side effects. I've been taking focalin for 4 years now and while it isn't perfect, it's worlds ahead of where I was. Willow

Is Focalin the same as Vyvanse? I was told that Vyvanse was the same as adderall but only the active ingredients and shouldn't have the nasty side effects... It seems like the same idea but with Ritalin. I am a little scared to try anything that is part of Ritalin because of the terrible side effect it had on me. I have never heard of dextostate and it seems like anytime I look any of these meds up they all read the same way and its hard to figure out what is different about each.

[Hank]

Is Focalin the same as Vyvanse? I was told that Vyvanse was the same as adderall but only the active ingredients and shouldn't have the nasty side effects... It seems like the same idea but with Ritalin. I am a little scared to try anything that is part of Ritalin because of the terrible side effect it had on me. I have never heard of dextostate and it seems like anytime I look any of these meds up they all read the same way and its hard to figure out what is different about each.

Vyvance is the sequal to Adderall XR. Adderall is a mix 2 stimulants, Vyvance is 1. Here is a link that may be helpful.
http://healthlifeand...ple-vs-complex/

[willow]

Is Focalin the same as Vyvanse? I was told that Vyvanse was the same as adderall but only the active ingredients and shouldn't have the nasty side effects... It seems like the same idea but with Ritalin. I am a little scared to try anything that is part of Ritalin because of the terrible side effect it had on me. I have never heard of dextostate and it seems like anytime I look any of these meds up they all read the same way and its hard to figure out what is different about each.

Hi again, here's a great site that I just found that explains so much.
www.erowid.org/chemicals/amphetamins/amphetamines.shtml

[willow]

Oops! I spoke too soon! That is not a good site for info. The more I read the less good info I got.
Sorry about that.

[DeathRabbit]

Someone may have already suggested this (I'm too out of it to read the whole thread) but I find Adderall to have much more efficacy if you don't take it constantly. I usually do not take Adderall on the weekends or on any days I feel well enough to walk on alone. Like most stimulants, Adderall has a law of diminishing returns, so occasionally backing of for a few days helps it keep it's efficacy. Also, I've noticed the adderall helps the most if taken immediately upon waking. If you let the fogginess settle in, it's hard to clear up, but if you take adderall right off, sometimes it can be avoided. Of course the adderall use makes me very ADD (ironic, no?) as well, but I'd rather be thinking too much than not at all.

[Megssosleepy]

Someone may have already suggested this (I'm too out of it to read the whole thread) but I find Adderall to have much more efficacy if you don't take it constantly. I usually do not take Adderall on the weekends or on any days I feel well enough to walk on alone. Like most stimulants, Adderall has a law of diminishing returns, so occasionally backing of for a few days helps it keep it's efficacy. Also, I've noticed the adderall helps the most if taken immediately upon waking. If you let the fogginess settle in, it's hard to clear up, but if you take adderall right off, sometimes it can be avoided. Of course the adderall use makes me very ADD (ironic, no?) as well, but I'd rather be thinking too much than not at all.

I wrote a long ramble in "free writing" I tried not taking anything last night/ today I felt like me again could eat and have normal thoughts but the sleepyness soon took over and started to worry I might see ants crawing accross my desk (why ants I have no idea but I always see freaken ants) so I took the addy about 20 mins ago and my jaw is getting tighter but I am starting to slooooowwwwwly perk up a lil. I do try to only take one dose on the weekends, and take a couple of naps. During the week I normally take it with Prozac as soon as I wake in the am 5:30am. I didnt take my Xyrem last night... got home took a xanax and a swing of Niquil slept great (or what seemed to be great because I didnt wake up) well It was hard to get out of bed this morning... took 45min longer then normal! Hit the snooze went directly into dreaming ohhhhh 4 times... TG I did not have SP w/ HH!!!
Adderall seems to numb my brain and make me ADD as well... can concentrate on anything and am very frigidity... another post I read said something like "it keeps your eyes open and body seems to be awake, but in reality we are still in micro sleep" I can totally agree with that! Yes my eyes stay open, but I am not all here! I am lucky that when I am productive a work I can work very fast... So I still get everything done, eventhough I space out and am on NN all the time lol
Okay I am rambline... must stop!

Thanks again to everyone for the suggestions! More the merrier! I have got to figure this treatment thing out!! B4 I literally go

[Megssosleepy]

Vyvance is the sequal to Adderall XR. Adderall is a mix 2 stimulants, Vyvance is 1. Here is a link that may be helpful.
http://healthlifeand...ple-vs-complex/

This was very interesting... I wish it went over every medication in the same fashion, Short and sweet made a lot of sense... The side effect I am trying to avoid is TMJ related, my jaw gets locked up and I clench my teeth and that causes me to press my tongue into my teeth so hard that both my teeth and tongue are affected! The appetite and heart beat are also my concerns. I tend to be very sensitive to everything except OTC Sleep aids and pain pills. Feeling a bit hopeless today.

[DeathRabbit]

I wrote a long ramble in "free writing" I tried not taking anything last night/ today I felt like me again could eat and have normal thoughts but the sleepyness soon took over and started to worry I might see ants crawing accross my desk (why ants I have no idea but I always see freaken ants) so I took the addy about 20 mins ago and my jaw is getting tighter but I am starting to slooooowwwwwly perk up a lil. I do try to only take one dose on the weekends, and take a couple of naps. During the week I normally take it with Prozac as soon as I wake in the am 5:30am. I didnt take my Xyrem last night... got home took a xanax and a swing of Niquil slept great (or what seemed to be great because I didnt wake up) well It was hard to get out of bed this morning... took 45min longer then normal! Hit the snooze went directly into dreaming ohhhhh 4 times... TG I did not have SP w/ HH!!!
Adderall seems to numb my brain and make me ADD as well... can concentrate on anything and am very frigidity... another post I read said something like "it keeps your eyes open and body seems to be awake, but in reality we are still in micro sleep" I can totally agree with that! Yes my eyes stay open, but I am not all here! I am lucky that when I am productive a work I can work very fast... So I still get everything done, eventhough I space out and am on NN all the time lol
Okay I am rambline... must stop!

Thanks again to everyone for the suggestions! More the merrier! I have got to figure this treatment thing out!! B4 I literally go

I hate narcolepsy because it seems the derp it causes can come on with no rhyme or reason. I stayed up super late 3 nights in a row last weekend, because we drove to Columbus Ohio to see Nightwish in concert. On those days, while I felt tired, my mental clarity was great. Now that my schedule is returning to normal and I'm getting 8.5+ hours of sleep, I am feeling *BEEP*tier, foggier, and more headachey. That drives me nuts. I think part of it is my roommate because he usually gets up at 5AM. He tries to be quiet, but I still either wake up because of him moving around or because the cat will start meowing to beg for food when anyone first wakes up. I love that cat, but I wanna skin the SOB when he starts meowing at the top of his lungs at 5AM! Ultimately,I think the quality of my sleep is just a crap shoot, based on how REM dominated it is. The mornings I wake up refreshed are usually the ones when I did not dream much the previous night. However, I usually dream quite vividly all night long, and even though I cannot recall what the dreams are after waking, I can still remember that I dreamed all night! Another weird thing with me is that I usually feel good for about 30 min after waking up. Only then, does the cloud of derp set in which makes it nearly impossible for me to be productive at work. I feel like a *BEEP*ty person because I screw off so much at work, but I cannot concentrate sometimes so I can't help it. Also, if I do manage to focus, I still have to take frequent breaks or I will enter turbo-derp mode and will lose all capacity for rational thought. I am really upset currently; I just feel like I am going to get fired and my life will be ruined. I have always dreamed of moving away from here to, because I have lived in my current town for 8 years, so I need a change of pace. But the poor job climate and the fact I would spectacularly fail at interviewing are keeping that dream from being realized. I hate my life with all of my hate currently. I'm not suicidal, but if lightning bolt randomly struck me dead, I wouldn't be too upset.

[Megssosleepy]

I hate narcolepsy because it seems the derp it causes can come on with no rhyme or reason. I stayed up super late 3 nights in a row last weekend, because we drove to Columbus Ohio to see Nightwish in concert. On those days, while I felt tired, my mental clarity was great. Now that my schedule is returning to normal and I'm getting 8.5+ hours of sleep, I am feeling *BEEP*tier, foggier, and more headachey. That drives me nuts. I think part of it is my roommate because he usually gets up at 5AM. He tries to be quiet, but I still either wake up because of him moving around or because the cat will start meowing to beg for food when anyone first wakes up. I love that cat, but I wanna skin the SOB when he starts meowing at the top of his lungs at 5AM! Ultimately,I think the quality of my sleep is just a crap shoot, based on how REM dominated it is. The mornings I wake up refreshed are usually the ones when I did not dream much the previous night. However, I usually dream quite vividly all night long, and even though I cannot recall what the dreams are after waking, I can still remember that I dreamed all night! Another weird thing with me is that I usually feel good for about 30 min after waking up. Only then, does the cloud of derp set in which makes it nearly impossible for me to be productive at work. I feel like a *BEEP*ty person because I screw off so much at work, but I cannot concentrate sometimes so I can't help it. Also, if I do manage to focus, I still have to take frequent breaks or I will enter turbo-derp mode and will lose all capacity for rational thought. I am really upset currently; I just feel like I am going to get fired and my life will be ruined. I have always dreamed of moving away from here to, because I have lived in my current town for 8 years, so I need a change of pace. But the poor job climate and the fact I would spectacularly fail at interviewing are keeping that dream from being realized. I hate my life with all of my hate currently. I'm not suicidal, but if lightning bolt randomly struck me dead, I wouldn't be too upset.

Sounds like you need to press harder for Xyrem!! my pup will wake me randomly but ever since i started on Xyrem he sleeps under the bed and checks on me 2x a night and then when he hears me wake we snuggle (i am kind of obsessed with my puppy butttttt he is kindof amamzing) The Xyrem makes it so all the little things that always woke me up dont. I no longer have to pee 10x a night either! And I found out the night sweats are a combo of going into deep sleep (a normal thing? who knew) and the amount of salt in my diet while on Xyrem!

Ive moved around a bit, but longed for my "hometown" while away. I am unhappy with my job, but I need the insurance. I am currently holding a 3.8GPA and this semester I no longer have my mind. Its my last semester and I cannot focus, I read words, but don't absorb anything... May say F it and try again in the Spring... I just can't do it! Ive always been a fighter, but the weight loss and EDS is really running me down!

As far the lightning I also feel that way sometimes... I cant kill myself but if something could do me the favor... My best friend took her own life (terrible long story not her fault, if there are angels she is surly among them) and I always tell myself I dont want to cause the pain that event caused me! No since starting Xyrem I no longer wish for death, I keep picturing this garden I want to create and in order to have that garden I must just press on! One day I will lay in the middle of this amazing garden in lush green grass... ahhhhh...

I think I need a new Doc. mine just isnt "working" for me, he just writes the script... I want to find something that wakes me up for real! That lets me enjoy food, life, and sleep well at night!!!! I dont think it exist... yet