Treatment For Tinnitus
Started by
thesleepypanda
, Sep 09 2012 04:54 PM
5 replies to this topic
#1
thesleepypanda
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Posted 09 September 2012 - 04:54 PM
Hey everyone! This is my first post, so I hope it doesn't sound too weird. I guess I'll just make this short and sweet. I have narcolepsy with cataplexy, as well as OSA. In addition, I'm suffering from what I believe is tinnitus. Though I get ringing in both my ears, it has been confined to my left ear recently. I'm not even sure if I would call it ringing now that I think of it. It's more like really high pitch static sounds I get... kind of like if you get really close to a TV when it's just a blue screen. It also tends to get louder whenever I try to go to sleep. I've already had my hearing tested, and my doc told me that my hearing is perfect. My sleep disorders doc thinks it might be an auditory hallucination, but I just don't know. Is there anyone else out there who has this ringing? Also, does anyone know of ways to treat it? I'd really appreciate any and all input on my issue. Thanks!
#2
Hank
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Posted 09 September 2012 - 09:00 PM
Thanks for giving me a reason to look at this. I randomly hear a high pitched sound. I had never considered a relationship to N/C.
Int J Psychiatry Med. 1978-1979;9(3-4):275-80.
Narcolepsy with tinnitus aura: interpretation.
Marco LA.
Abstract
A fifty-five year old man was admitted to our ward for evaluation of narcoleptic-cataplectic attacks which were signaled by a "hissing sound like high pressure steam leaking out of a pipe." This tinnitus was exclusively localized to the right ear. It started about sixty-to-ninety seconds before the cataplectic episode (affecting mostly the jaw muscles) and lasted through part of it as it became progressively louder toward the end and ceased abruptly. It is postulated that, along with the collapse of tonic musculature of the mandible, a decrease of proprioceptive tone also affected the tensor tympani muscle leaving the middle ear vulnerable to internally generated noise. We further postulate that tinnitus was finally arrested by the generation of phasic bursts of contraction of the tensor tympani and/or the stapedius muscle at a later stage of cataplexy.
Int J Psychiatry Med. 1978-1979;9(3-4):275-80.
Narcolepsy with tinnitus aura: interpretation.
Marco LA.
Abstract
A fifty-five year old man was admitted to our ward for evaluation of narcoleptic-cataplectic attacks which were signaled by a "hissing sound like high pressure steam leaking out of a pipe." This tinnitus was exclusively localized to the right ear. It started about sixty-to-ninety seconds before the cataplectic episode (affecting mostly the jaw muscles) and lasted through part of it as it became progressively louder toward the end and ceased abruptly. It is postulated that, along with the collapse of tonic musculature of the mandible, a decrease of proprioceptive tone also affected the tensor tympani muscle leaving the middle ear vulnerable to internally generated noise. We further postulate that tinnitus was finally arrested by the generation of phasic bursts of contraction of the tensor tympani and/or the stapedius muscle at a later stage of cataplexy.
#3
dailee
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Posted 15 September 2012 - 09:46 PM
Do you take Xyrem. I have noticed ringing in my ears which is worse when I take a higher dose of Xyrem. However, I usually just go to sleep w/tv or radio on which seems to mask the noise. I now it goes against good sleep hygiene but I sleep so much better w/noise like that compared to w/no noise. When I went for a sleep study they wouldn't let me watch tv to go to sleep so I didnt sleep very much at all that night. I fell asleep w/every nap before 5 mins but then the doctor said they couldnt' say I had narcolepsy because I didnt sleep that much the night before. In fact the doctor said he had never met anyone with narcolepsy who couldnt sleep at night. Now I know that doctor didn't know much about narcolepsy about all since so many of us have trouble sleeping at night but sleep during the day instead.
#4
Hank
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Posted 16 September 2012 - 12:49 PM
Do you take Xyrem. I have noticed ringing in my ears which is worse when I take a higher dose of Xyrem. However, I usually just go to sleep w/tv or radio on which seems to mask the noise. I now it goes against good sleep hygiene but I sleep so much better w/noise like that compared to w/no noise. When I went for a sleep study they wouldn't let me watch tv to go to sleep so I didnt sleep very much at all that night. I fell asleep w/every nap before 5 mins but then the doctor said they couldnt' say I had narcolepsy because I didnt sleep that much the night before. In fact the doctor said he had never met anyone with narcolepsy who couldnt sleep at night. Now I know that doctor didn't know much about narcolepsy about all since so many of us have trouble sleeping at night but sleep during the day instead.
I do have N/C and I take Xyrem. I use a sound machine with white noise at night. Sometimes when I wake up at night, I hear everything. The sound machine helps me a lot because the static sound covers up noises, and you tune out the static sound quickly. I find the TV too stimulating at night and it just doesn't work for me. Especially if an Oxyclean commercial comes on.
#5
Megssosleepy
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Posted 19 September 2012 - 02:17 PM
Do you take Xyrem. I have noticed ringing in my ears which is worse when I take a higher dose of Xyrem. However, I usually just go to sleep w/tv or radio on which seems to mask the noise. I now it goes against good sleep hygiene but I sleep so much better w/noise like that compared to w/no noise. When I went for a sleep study they wouldn't let me watch tv to go to sleep so I didnt sleep very much at all that night. I fell asleep w/every nap before 5 mins but then the doctor said they couldnt' say I had narcolepsy because I didnt sleep that much the night before. In fact the doctor said he had never met anyone with narcolepsy who couldnt sleep at night. Now I know that doctor didn't know much about narcolepsy about all since so many of us have trouble sleeping at night but sleep during the day instead.
They wont let you have TV but they will let you have white noise... I can only sleep with steady white noise... even on Xyrem... I woke up a bunch last night cuz my fan was clicking
And you are correct your doc didnt know what he was talking about. I went to see mine because I wasnt sleeping at night (waking 20+ times) and thats what clued him in.
#6
DeathRabbit
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Posted 28 September 2012 - 03:55 PM
They wont let you have TV but they will let you have white noise... I can only sleep with steady white noise... even on Xyrem... I woke up a bunch last night cuz my fan was clicking
Tinnitus will naturally sound worse at night time than throughout the day, due to the relative silence. Generally the brain filters out noises at lower dB than the ambient surroundings. So during the day, the tinnitus gets suppressed. I'm not saying there isn't a correlation with Narcolepsy, though. Ever since I started getting worse and worse with the narcoderp, I noticed that I will occasionally have acute bouts where I will go completely deaf in one ear for about a second, then as hearing returns there is a tinnitus like effect, but at a much higher pitch and louder volume than my regular tinnitus. My regular tinnitus I've had most of my life, because my ears were damaged slightly by infections I had as a child. But these tennitus attacks only started some time in my 20s.
