2 replies to this topic

[xyrem2011]

I have been on xyrem several months. throughout the period i always had issues with not sleeping long enough on each dose, so i did for a time try three doses. during this time, i feel that my physical apperances and mannerisms no longer match what i am feeling inside (post three dose xyrem usage, beforehand inside and outside had matched) for instance i have had a lot of people comment to me that i look angry. where i am not angry at all. i just really feel tired. but if you were to look at my face even though i have only slept 4 hours i dont look tired, more like a blank stare,. anyone have any insight on how to make it go away? is it just sleep deprivation or is this medication just not the right one for me?

[xyrem2011]

I have been on xyrem several months. throughout the period i always had issues with not sleeping long enough on each dose, so i did for a time try three doses. during this time, i feel that my physical apperances and mannerisms no longer match what i am feeling inside (post three dose xyrem usage, beforehand inside and outside had matched) for instance i have had a lot of people comment to me that i look angry. where i am not angry at all. i just really feel tired. but if you were to look at my face even though i have only slept 4 hours i dont look tired, more like a blank stare,. anyone have any insight on how to make it go away? is it just sleep deprivation or is this medication just not the right one for me?

any advice would be totally appreciated.

[Hank]

I have been on xyrem several months. throughout the period i always had issues with not sleeping long enough on each dose, so i did for a time try three doses. during this time, i feel that my physical apperances and mannerisms no longer match what i am feeling inside (post three dose xyrem usage, beforehand inside and outside had matched) for instance i have had a lot of people comment to me that i look angry. where i am not angry at all. i just really feel tired. but if you were to look at my face even though i have only slept 4 hours i dont look tired, more like a blank stare,. anyone have any insight on how to make it go away? is it just sleep deprivation or is this medication just not the right one for me?

As far as sleeing long enough, I don't know how many hours you are getting now. Right now, for myself, I am more concerned about sleep quality than duration. I would like to have both. The things that have been helpful to me are: not eating 3 hours before bed and a prescription sleep med to lengthen my sleep while I approach 4.5X2, but not after. Some kind of exercise helps- I always sleep better when my body is tired out.
I had previously had comments about looking angry, but that was Cataplexy in my face. For example, my wife would lean over to me in church and say I looked angry, because my face was slack. I really seem to throw people off with my non-verhal behavior. They pick up signs from me that are not accurate. I have not tried the 3 doses because I am concerned that my sleep will not be deep enough, but I am curious about this approach. I continue to benefit from 2 doses per night so I will not dabble. It sounds like a problem to work out with your doc if you're not sleeping well. I hope you get the solutions you need so you can be more comfortable day and night.