Diagnosis - Narcolepsy and Epilepsy
Posted 19 October 2007 - 12:12 PM
Posted 25 October 2007 - 08:55 PM
am i the only one on the planet that has this?
is there a correlation between the two ( narcolepsy and epilepsy)?
does one effect the other?
yes i know these are questions to ask the doc but i thought i could gather as much info as possible. i know what my life is like. yep its been difficult, i wish i would have pursued things further 12 years ago when they said it was epilepsy but i wasn't interested then at age 20. now 34, and i want to learn, i want to take charge, but i'm getting zilch! the only books i've found were "sleep disorders for dummies" and "feeling dizzy"
i know people like us get frustrated. i'm there, peters.
Posted 30 October 2007 - 08:42 PM
Posted 18 November 2007 - 10:41 PM
The TS was a huge part of my early childhood, but I forgot about it completely until high school when I started feeling tired all of the time. I questioned my mother about it some, and found out what it was called (Tuberous Sclerosis isn't something an eight year old memorizes), and researched it from time to time. It doesn't really affect my life anymore.
Since my mid-high school years, I started feeling very tired, even falling asleep in class my senior year (ALL OF THE TIME in college). Anyway, after a few years of blind guessing by my doctors (diabetes, sleep apnea) and my sudden realization that paralysis and hallucinations are not normal experiences, I finally went to a sleep doctor who diagnosed me correctly.
I don't know anything about drug interactions between the two, as I just started Provigil (which is worthless) and will get Xyrem in sometime this week. I haven't been on meds for my seizures since I was about eight years old.
Posted 12 February 2008 - 11:50 PM