21 replies to this topic

[exanimo]

I started a blog to document my pregnancy since I couldn't find any information about what it was like to be pregnant with narcolepsy. It's not very well done, but I plan to hopefully continue adding to it as I go from being pregnant to being a mom with narcolepsy....

http://sleepy-mwn.blogspot.com/

I think that is great! I am not having kids any time soon, but want to eventually! And I think I'd want to blog or vlog even.

Which reminds me there's a vlog on YouTube and I think she is awesome! She has N w/ C and I really like watching her videos about N.

Link to her YouTube:

http://m.youtube.com...h?v=iDuSxGOV6fI

Ther are other blogs there too. Sometimes video is a little easier to follow than blogs. I'm glad this thread has had so many responses! Connection is so important to support which is so important to our ability to raise awareness!!

Please keep posting any new updates. I have my LJ but I know I've only updated it a few times. I'll try a littl harder! I'd love to try vlogs as well!

[Heidi L]

I have a website about my remission from narcolepsy using a gluten free diet.

Lots of scientific info about Orexin there too.

Hope you stop by.

 

Here's my video.  Heh.