Sleep Study This Week
Posted 18 June 2012 - 12:26 PM
This is really impiortant to me and I am very nervous, I wonder if someone can give me some advice? I would appreciate it!
Posted 19 June 2012 - 04:16 AM
My sleep clinic allowed me to bring a blanket and pillow from home. Be sure you bring suitable pajamas. They will be hooking you up to various wires, mostly on your head, but they also place them on your chest (to monitor heartrate) and on your legs (monitor any leg movements). I would recommend a pair of pajama shorts, or loose pants, and a loose t-shirt or tanktop. These wires ARE uncomfortable, but they are not impossible to work around. Toothbrush, a snack or two as well. And some water. The clinic I was at did not offer any food accomadations, and this isn't so bad for the night study (PSG) but if you do end up staying for the MSLT the next day, you will want food! My clinic actually ordered food from a local restaurant that they put on my bill. But just in case, bring something easy to make. I also brought a packet of oatmeal for breakfast.
I have read on other posts here that you are allowed to use sleep aids such as ambien. If you have it, take it with you if you think it will help you. As for positioning during the night - I slept on my back and on my left side (to avoid the wires coming off in the middle of the night). And they do recommend that you shower and wash your hair prior to the study because if you have oils (from not having washed your hair or body) they can make it easier for the wires to come off or not stick properly. I used some relaxation techniques to help me relax and fall asleep. Deep breathing, images, etc. Kind of a light form of meditation. It helped. I don't know if they allow you to bring an ipod or mp3, but maybe bring one and ask if you can use it. If you think that might help you relax and sleep better.
Also bring something to do for the next day (if you end up staying the MSLT). If you have a difficult time staying awake reading, though, I would NOT recommend a book. I took a book and I ended up dozing off a few times while trying to read. (and you're not supposed to fall asleep in between the naps!)
I hope some of this helped. Just remember to relax. And I really hope that you sleep technologists are nice and have a good bedside manner! Mine did, as well as the receptionist and it made all of the difference in the world!
Good luck! Be sure to let us know how it goes!
Posted 19 June 2012 - 03:34 PM
Posted 19 June 2012 - 06:07 PM
Best of luck tomorrow night. I know EXACTLY how you are feeling. I'm so exhausted and my quality of life is so lacking due to my sleep issues that I NEED a diagnosis. I need it for 2 reasons, 1 - so that I don't have to wonder if I am going insane anymore and 2- so that I can hopefully get some treatment that will allow me to get more restorative sleep so that I can regain my previous levels of activity and get back on some sort of schedule with sleeping and eating so that I can hopefully lose at least a good chunk of the weight I've gained. Like the previous poster said, just try to relax. I would recommend trying to focus on anything other than what they may or may not find during your studies. I laid there and worried so much when I couldn't stay asleep that I psyched myself out and only slept 90 minutes all night and couldn't stay for my MSLT. I'm sorry that the sleep doc was a jerk. One of my doctors is like that as far as asking me questions and not giving me time to answer so I know it's frustrating. I've worked with many doctors professionally and it seems that many times, the smarter they are the harder time they have relating to other people who aren't doctors. I'm not sure about where you live but there are not many Neurologists that specialize in sleep in my area so there aren't many choices. There are only two in my county but one doesn't take my insurance and the other has negative patient reviews online so I opted for choice #3 who's office is over an hour drive away from my home but he's been very good so far so I don't mind the drive too much. Hopefully your doc will be nicer once you are through the testing and have a diagnosis. If not, I'd say try to find another if you can. With something like this you need a doc that understands your needs.
Thanks for the feed back, I really need it. Right now I am at work(for another hour or so) and I feel like I have been up for days. I litterally begin to dream while I am awake. I am not looking forward to the ride home. I have been shot for the last 6 hours. Hopefully they will diognose me, at this point I don't care whehther it is narcolepsy or idiomatic hypersomnia, I just want to be treated. I wish yo0u the best with your situation. I can't wait to let everyone know what happened. Thanks again!
Posted 22 June 2012 - 08:22 AM
minutes. They showed me that my breathing is irradict at night, but not enough to qualify for sleep apnea. They said they will diognose me with narcolepsy without cataplexy. They sent me home with a breather
for night time sleep because they said that it will make my symptoms for narcolepsy less. I think it is an insurance scam. I don't know I haven't had sleep apnea since high school and my oxygen never went below
90. Also there was never more than a 3 point difference in my oxygen, from 96 to 93 or from 94 to 91. I wonder if other people with narcolepsy have had that issue? The doc said he would treat me with NuVigil,
but they want me to sleep a week with this breather to see how much it might reduce my day time sleepiness? Wierd. I am grateful for this forum. I am not the type of person who likes to share his issues but it
seems helpful and everybody here seems so nice.
Posted 22 June 2012 - 10:53 AM
Posted 22 June 2012 - 11:25 AM
Posted 22 June 2012 - 02:26 PM