1 reply to this topic

[Nezzy]

Hi All! I posted my story in the diagnosis section so if you would like to know how I found out about my N its there for anyone to read.

I had a couple of questions because it all still seems a little confusing to me. So here goes

I have had what I now know to be EDS all of my life but I always was told the same old story "your a mom, everyones tired blah blah blah" For the most part it is not hard for me to overcome my sleepiness as long as I am doing something but as soon as I hit that couch at 5pm after a long day at work I am out for at least an hour. My question is do you guys have set times where your EDS comes on? It seems like it always been like that for me I am okish in the morning but around noon I get tired and then again at 3 and then 5 and 9 I was always told those are normal times for people to get tired because blood sugar drops and blah blah.

The other thing is I worry about telling to many people because of the stigma related to the disorder (i.e my kids friends parents may be uneasy about me driving their children anywhere because they think I might fall asleep and cause an accident) I want people to know I am not a lazy B**ch but I don't want to go to deep into things is there a way to soften this blow?

I told my husband last night that I love him for being so supportive, he has really picked up in the helping around the house and with the kids department, but I also wanted him to know that these symptoms didn't just appear because I got the diagnosis and that I have always been tired but to afraid to do anything about it because of the fear of being called lazy or a bad mom. I am glad that now I have a a name and excuse but I know this will be an uphill battle.

[TiredAgain]

Hi All! I posted my story in the diagnosis section so if you would like to know how I found out about my N its there for anyone to read.

I had a couple of questions because it all still seems a little confusing to me. So here goes

I have had what I now know to be EDS all of my life but I always was told the same old story "your a mom, everyones tired blah blah blah" For the most part it is not hard for me to overcome my sleepiness as long as I am doing something but as soon as I hit that couch at 5pm after a long day at work I am out for at least an hour. My question is do you guys have set times where your EDS comes on? It seems like it always been like that for me I am okish in the morning but around noon I get tired and then again at 3 and then 5 and 9 I was always told those are normal times for people to get tired because blood sugar drops and blah blah.

The other thing is I worry about telling to many people because of the stigma related to the disorder (i.e my kids friends parents may be uneasy about me driving their children anywhere because they think I might fall asleep and cause an accident) I want people to know I am not a lazy B**ch but I don't want to go to deep into things is there a way to soften this blow?

I told my husband last night that I love him for being so supportive, he has really picked up in the helping around the house and with the kids department, but I also wanted him to know that these symptoms didn't just appear because I got the diagnosis and that I have always been tired but to afraid to do anything about it because of the fear of being called lazy or a bad mom. I am glad that now I have a a name and excuse but I know this will be an uphill battle.

I couldn't wait to tell my family and friends because I was tired of the lazy jokes and I'm not half as bad as a lot of people with N. I am tired all the time but I don't sleep all the time. There are times I can't fall asleep but I'm to tired to do anything else but lay down.

I have certain times of the day that are worse then others but I don't have exact times. There are times I feel pretty good all day but I'll end up in bed by 9:00. I take Adderal in the morning and it helps a little. Like I used to be so tired driving to work that I would pull over and sleep for 10/15 mins and that doesn't happen anymore. I can usually fight through my sleep attacks, well I can stay away but I can't think clear and some times I talk funny. I find weekends to be the worse, it doesn't make since because I don't work on the weekend but I am more tired. I think because my routine is off, I stay in bed longer and take my pill later etc..

Anyway you don't need to tell anyone your not comfortable telling. When I tell people I always say "I know you think I'm going to fall asleep in the middle of our conversation but a small percentage of people of N that bad. It just makes me tired all the time and some times I shut down". So if you think I parent won't trust you anymore with their child don't tell them or tell them and explain to them that you never feel asleep driving their child before, and that you didn't just wake up one more with this you just put a label to it.

Good Luck



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