Being A Single Parent With N/c
Posted 29 March 2012 - 05:41 AM
Posted 20 May 2013 - 09:01 AM
I am not a single parent and I don't have typical cataplexy. BUT. I am a parent that does most of the work and I also find it extremely difficult. My son is a toddler so he doesn't notice as much but it's my extreme sleepiness that makes me not very active with him. I am extremely interactive with him, talking to him and joking, reading to him. We have an amazing relationship. Playing, however, being super active, I just don't have the energy for it. Of course I force myself to sometimes but I definitely feel like a crap parent at times. Taking care of almost all of the daily household responsibilities and the majority of the responsibilities in caring for my son... I honestly have no idea how I have made it this far.
I suppose what I mean to say in all of it is that, loving your child and showing you love them to the best of your ability is what matters. That doesn't make it feel any better when you see her get sad or disappointed but I am sure she gets it. She will thank you later for staying engaged and trying to find ways to bond and enjoy your time together in spite of your condition. Sounds like you're doing a pretty awesome job.
Sorry if that wasn't exactly the answer you were wanting. I just know how difficult being a parent already can be. Then, adding something like narcolepsy on top of it and continuing to be a good parent is extremely admirable.
Posted 20 May 2013 - 10:00 AM
My daughter and I have a super relationship were very close. We have had our times and now that shes older she understands more thank goodness. She knows that when I have an attack just to stay calm and let it run its course and she has learned to noticed the little things like the twitching or me taking deep breaths trying to calm it down lol. Guess she has learned when I need a break. Your right its extremely hard to raise a child when you have Narcolepsy finding the energy to play games or go to school activities is really hard sometimes. Not to mention the crowds. You would have to have cataplexy to understand that. Seems like the same thing that would set off a panic attack would set off the cataplexy. I really appreciate your reply it helps alot.
Posted 20 May 2013 - 11:24 AM
Well, you can say that there's at least one good thing that will come out of your cataplexy especially- I am sure your daughter will grow up to be a very non-judgmental, helpful, caring adult. In my opinion, that's maybe the most important part about the influence we have on our children. Sometimes it's learned in less than optimal circumstances but I suppose that's better than not being learned at all.