Looking for support in or around the Peninsula/Sf Bay Area.
San Francisco to San Jose
Support Group In Or Around Sf Bay Area
Started by
FinallyAwake
, Sep 05 2011 02:44 PM
17 replies to this topic
#2
Guest_dinah_*
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Posted 10 October 2011 - 06:10 PM
Optional= and content=Contact Mali Eisen at Stanford University -- narcolepsy research group headed by Dr,. Mignot -- surely, she will know about a group if one exists.
Looking for support in or around the Peninsula/Sf Bay Area.
San Francisco to San Jose
#4
Kayra
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Posted 12 December 2011 - 02:36 AM
Thank you very much.
Hey, I'm from the Bay Area specifically Santa Cruz maybe if there is no group we could maybe start one?
#5
SleepyinSF
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Posted 27 February 2012 - 01:28 AM
Hey, I'm from the Bay Area specifically Santa Cruz maybe if there is no group we could maybe start one?
Hey, I live in SF and I'd be interested in starting a group too if there isn't one. I've looked around a bit and have found one.
#6
Guest_Drea_*
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Posted 28 February 2012 - 07:44 PM
Hey, I live in SF and I'd be interested in starting a group too if there isn't one. I've looked around a bit and have found one.
What group did you come across? I have idiopathic hypersomnia and would also be interested in a support group.
Thanks!
#7
Kayra
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Posted 17 March 2012 - 09:09 PM
Cool if you could potentially pass on that information of the group? I would be super appreciative. I heard about one in SF and contacted one person but never heard word of any actual meetings. But anyways if you could pass on the info my email is kayra.fails@gmail.com Thanks a lot!Hey, I live in SF and I'd be interested in starting a group too if there isn't one. I've looked around a bit and have found one.
#8
Niemie
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Interests:Things I do to stay awake: dog training, cooking, running, hiking, historic home restoration, travel
Things I would love to do more often if I could stay awake: reading, watching movies, writing, drinks with friends, etc.
Posted 12 April 2012 - 01:05 PM
I'm in Sacramento, but travel to SF occasionally. I'd be interested in learning more about a group. Thanks!
#9
gina123
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Posted 24 April 2012 - 07:30 PM
I would love to start a support group.... My email is paulsurinder1@yahoo.com. Let's do it. I will make the arrangments, and post it. give me some ideas of times and days.
#11
LauraL
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Posted 25 April 2012 - 10:29 AM
Also interested. I'm in Sacramento. East Bay (or Sacramento) would be ideal, but I'd be interested no matter where you set up.
Just diagnosed two weeks ago. Suddenly everything is making sense!
Just diagnosed two weeks ago. Suddenly everything is making sense!
#12
Dakota
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Posted 29 July 2012 - 12:33 PM
Also interested. I'm in Sacramento. East Bay (or Sacramento) would be ideal, but I'd be interested no matter where you set up.
Just diagnosed two weeks ago. Suddenly everything is making sense!
Totally get that. I also am in Sacramento but would be interested!
#13
redsonya
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Posted 30 August 2012 - 01:37 AM
I live in the SF Bay area (San Bruno) and I am sper interested in attending a support group if one exists or even interested in helping start a groupLooking for support in or around the Peninsula/Sf Bay Area.
San Francisco to San Jose
#14
LauraL
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Posted 31 August 2012 - 01:52 PM
Totally get that. I also am in Sacramento but would be interested!
Hi Dakota! Just saw this today. Haven't been very good at checking these! I've met one other woman in Sac with N--she and I got together a few months ago to chat--super helpful. My neuro gave me the info for the director of the Sutter Sleep Center, and suggested I contact him if I wanted to try to get a group together--they could provide us with a place to meet, and possibly a staff member to meet with us? I never followed up on it, but maybe I should.
#15
Guest_nancy waldman_*
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Posted 04 November 2012 - 11:00 PM
I am looking for a support group, (or just someone to email or talk to)for my 12 year old daughter who has pretty severe narcolepsy with cataplexy. She feels alone and would really like to share her feelings with another 12 year old girl who might have similar issues.What group did you come across? I have idiopathic hypersomnia and would also be interested in a support group.
Thanks!
#16
Guest_nancy w_*
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Posted 04 November 2012 - 11:01 PM
I am looking for a support group, (or just someone to email or talk to)for my 12 year old daughter who has pretty severe narcolepsy with cataplexy. She feels alone and would really like to share her feelings with another 12 year old girl who might have similar issues.What group did you come across? I have idiopathic hypersomnia and would also be interested in a support group.
Thanks!
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