Just curious what life is like for those who are over 50 years old.
Are your symptoms under control?
Are you able to participate in sports? or exercise regularly?
Are you a volunteer in your community?
Do you work or are you disabled?
Are you taking the same meds you began at the beginning of the illness?
Do you have to sleep more now than you did at the beginning of the illness?
Do you drive? If not, how do you get around?
Any advice for one who is concerned about declining health?
Personal Poll
Started by
angeline
, Jul 18 2011 08:46 PM
2 replies to this topic
#2
TiredAgain
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Posted 19 July 2011 - 12:06 PM
[quote name='angeline' date='18 July 2011 - 08:46 PM' timestamp='1311039991' post='16941']
Just curious what life is like for those who are over 50 years old.
Are your symptoms under control? No
Are you able to participate in sports? or exercise regularly? I have to really push myself to exercise, lately I haven't
Are you a volunteer in your community? Yes I volinteer with Give2TheTroops
Do you work or are you disabled? work
Are you taking the same meds you began at the beginning of the illness? I started on Privigal only for a month, then went to Adderal
Do you have to sleep more now than you did at the beginning of the illness? No, pretty much the same
Do you drive? If not, how do you get around? Yes, and I travel 40 mins to and from work. This is the toughest thing for me.
Any advice for one who is concerned about declining health? I wish I had some but I don't
Just curious what life is like for those who are over 50 years old.
Are your symptoms under control? No
Are you able to participate in sports? or exercise regularly? I have to really push myself to exercise, lately I haven't
Are you a volunteer in your community? Yes I volinteer with Give2TheTroops
Do you work or are you disabled? work
Are you taking the same meds you began at the beginning of the illness? I started on Privigal only for a month, then went to Adderal
Do you have to sleep more now than you did at the beginning of the illness? No, pretty much the same
Do you drive? If not, how do you get around? Yes, and I travel 40 mins to and from work. This is the toughest thing for me.
Any advice for one who is concerned about declining health? I wish I had some but I don't
#3
Sleepless in Ohio
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- Interests:Spacesuits, computers,ham radio, getting some sleep
Posted 19 July 2011 - 05:46 PM
Hi, I'll be fifty in a couple weeks, so technically I don't qualify. My narcolepsy appeared late in my life, I have had worsening symptoms for about 6 or 7 years, but was just diagnosed in June. I get 3-4 hours a night of sleep, and this is a big improvement over the recent past. Doc tried Nuvigil, but it did nothing for me, so on to Dextroamphetamines (misspelled that one I'll bet) too sleepy to look it up.
They seem to help a lot.
I drive on local trips, 7 or 8 miles to work, 10 or 15 to the grocery. But if it's more than about 30 miles the wife drives.
I work, I am the department head of the water reclamation dept. for a medium size city. The key to working with N is to never sit down. Some of the operators that work for me have walked into my office to find me standing behind my desk talking on the phone. Luckily, everyone on my team is just a little bit "off" so they look at my chair, and shrug they're shoulders and walk out.
My symptoms are better now than ever, but I would guess it because of the meds.
I was a volunteer Fire Fighter and EMT until my 30's. But now my job takes up most of my time, its okay, I love it. Never been happier professionally.
I know this is out of order, my symptoms are better controlled now. (but again, I was just diagnosed)
My advice? Push yourself. Find something you love doing, something that you want to get out of bed for. And do it.
Good luck
D
They seem to help a lot.
I drive on local trips, 7 or 8 miles to work, 10 or 15 to the grocery. But if it's more than about 30 miles the wife drives.
I work, I am the department head of the water reclamation dept. for a medium size city. The key to working with N is to never sit down. Some of the operators that work for me have walked into my office to find me standing behind my desk talking on the phone. Luckily, everyone on my team is just a little bit "off" so they look at my chair, and shrug they're shoulders and walk out.
My symptoms are better now than ever, but I would guess it because of the meds.
I was a volunteer Fire Fighter and EMT until my 30's. But now my job takes up most of my time, its okay, I love it. Never been happier professionally.
I know this is out of order, my symptoms are better controlled now. (but again, I was just diagnosed)
My advice? Push yourself. Find something you love doing, something that you want to get out of bed for. And do it.
Good luck
D
