5 replies to this topic

[MMK]

Can you tell how you reach college /office early.
Is it difficult?

What are solutions? Any idea

[merrymom1013]

I'm not sure I understand your question. Are you asking about obtaining accommodations? When my daughter was looking at colleges, we always looked on the website for information about disability accommodations, and asked some general questions.
No specific accommodations will be promised before you enroll (in the US) & they don't consider your disability when you apply for admission.
Once accepted, I made sure her doctor had written a detailed letter explaining her diagnosis, treatment and why she required certain accommodations. She met with the disability office months before school starts and had them review all of the information & agree to provide the accommodations. It is important to follow the policies of the college/university. Many have special forms they need you to fill out. If you've already researched this and have ready everything they need, it will be a big time saver.
When school begins in September, she will need to meet with the disability office again to get her accommodations written up for the semester and share the information with each professor.

[MMK]

Thanks for your encouragement , Well I am in India and already had discussion with head of the college ,he was co-operative , now problem is that I need to defeat the problem . When best student is in trouble they too have soft corner but I am not interested now giving justification it is simply not my habit.

I would like to know how you handle your child while helping her to get up early ,etc. Now it is only one thing under any and all circumstances to attain what I want. Now henceforth it is better to forget justification and concentrate on performance and I need information how you handle child and pack her to educational institution even if sleepy .Further information thereof

[merrymom1013]

When she first developed narcolepsy, there was little I could do to get her up & off to school. She missed a lot of school; to the point of working with online classes and homebound tutors for about 3 years.
It took awhile to get the right medication for her (she takes xyrem, adderall & a little dexedrine in the afternoon). After things got "better" I would wake her about 30 to 45 minutes before she had to wake up & give her the adderall. She'd fall back asleep, but when I would go to wake her a little later, the adderall would be starting to work & she could wake up. She was very determined to make it to school every day, which helped a lot.
Now she does that on her own, with 2 alarms in the morning. Next month, she goes away to college. She doesn't have any classes before 9 or 10 in the morning, so she won't have to be ready by 7 am anymore.
It took awhile for the doctor to get the right medications & dose for her. It also took her awhile to learn how to live with the narcolepsy. You also sound determined to learn how to deal with this illness- be patient & you will figure out what works for you.

[MMK]

I met Dr. yesterday he reduced one dose at night time. Now bit easy to get up early but yesterday whole day sleepy .Today I have decided to start doing submission no matter what happens. Max. I may sleep on table nothing more can happen.

Determination is in mind not on the performance/result.

Thanks for guiding me. I am 8th month old with regards to diagnosis made. First six month had more anxiety and trouble , from last month relaxed (May be Reboxtein effect)

[MMK]

What your child use to do if she misses her friends when she was absent in school/college . I missed many friends unnecessary last month