6 replies to this topic

[sleepaholic]

Just visited my sleep doc (probably last time with him) and discussed other med options since the provigil doesn't seem to be working for me. I am going to give it one more shot at 400mg in the morning. I had been taking 200mg morning, 200mg afternoon, and 100mg late afternoon. This actually made my sleep attacks worse - I would basically crash when I got home from work. I never experienced this without meds, at least not that extreme. Anyway, he did say that he could prescribe Nuvigil which I have heard about but didn't think that it was available for rx yet. He tells me that 4-6 weeks ago it became available but he doesnt think it will be effective since I do not respond well to provigil. He also added that if the new dose of provigil doesnt work then he thinks I should just 'cope' with my symptoms since I can still somewhat funtion during the day (wrong answer - considering I have seen him 2x...a little early to be giving up on a patient, don't ya think) Is anyone else taking nuvigil? and, is it working for you?

[Lais02]

I'm not taking it yet... I have an appointment coming up though, so now I'm excited. I had no idea it was already out.

Thanks for the info

Oh yea and I also tried the 500mg a day of provigil... This was terrible for me. I think I was expierencing a drug overdose at that point. It was scary! I'm on 400mg Provigil right now and still sleepy.

[sleepaholic]

Great. I would definitely ask your doc about nuvigil. I still have yet to find anywhere online that actually confirms that nuvigil is available for rx at the moment. No pharmacy that I could find lists it as a current available drug so my doc might not be a reliable source of info. I am actually getting a referral to go to someone else, but good luck

[Furio83]

Great. I would definitely ask your doc about nuvigil. I still have yet to find anywhere online that actually confirms that nuvigil is available for rx at the moment. No pharmacy that I could find lists it as a current available drug so my doc might not be a reliable source of info. I am actually getting a referral to go to someone else, but good luck

Yeah, I haven't heard anything about its release.

[Marcianna]

I never heard it about this one before. new drugs make me very nervous. be very cautious when entering this new drug domain... make sure to wear you psychological ninja suit.....

[merrymom1013]

Just cope with your symptoms because one drug didn't work? There are many drugs, many dosages, many more combinations. My question to my daughter's sleep specialist when there is a problem is "Have you exhausted your bag of tricks?" If the doctor you are seeing only has a one trick bag, I would be concerned.
Sue

[Kimberly]

I completely agree with Merrymom. Here are some other stimulants that are used to treat EDS:

Provigil (Modafinil)
Ritalin (Methylphenidate)
Dexedrine/Dextrostat (Dextroamphetamine-Sulfate)
Desoxyn (Methamphetamine-HCl)
Adderall (mixed Amphetamine salts)

There is a new drug called Vyvanse (Lisdexamfetamine), I don't know a lot about it.