Narcolepsy Network Support Group of MetroDenver
Website: http://groups.msn.co...ort-denvermetro
Contact: Beverly at emerging2@msn.com
Colorado Support Groups
Started by
greatbig47
, May 29 2008 09:29 PM
15 replies to this topic
#2
Sunshine
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- Location:Mile High
Posted 21 July 2009 - 07:23 PM
Don't tease me.....the link doesn't work!!! Neither does the email!!!!
It is driving me NUTS that Colorado does not have a support group. I KNOW there are narcoleptics here....SO WHERE ARE YOU!!!
It is driving me NUTS that Colorado does not have a support group. I KNOW there are narcoleptics here....SO WHERE ARE YOU!!!
#3
sleepless sleeper
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Posted 21 July 2009 - 09:24 PM
i'm 7 hours to your north. hey! let's drive and meet up with each other!
HA HA HA HA HA HA HA HA HA
I'm so funny. ahhhhhhhhhhhhhh. yeah. let us DRIVE and met up with each other. i almost didn't make it home from the doctor's office today.
HA HA HA HA HA HA HA HA HA
I'm so funny. ahhhhhhhhhhhhhh. yeah. let us DRIVE and met up with each other. i almost didn't make it home from the doctor's office today.
#4
Mike M
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- Location:Saint Paul, MN
- Interests:Ultimate Frisbee, Literature, Film, Music, Narcolepsy, Education
Posted 21 July 2009 - 09:30 PM
Don't tease me.....the link doesn't work!!! Neither does the email!!!!
It is driving me NUTS that Colorado does not have a support group. I KNOW there are narcoleptics here....SO WHERE ARE YOU!!!
Sunshine,
We are sorry that this old information is incorrect. We will do our best to track down any possible support groups in Colorado. Please also feel free to PM me if you have specific questions or what to discuss anything in greater detail. Thank you for notifying us that this information is no longer valid.
#5
SubtleGrace
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- Location:Fort Collins, CO
Posted 20 March 2011 - 12:15 PM
Sunshine,
We are sorry that this old information is incorrect. We will do our best to track down any possible support groups in Colorado. Please also feel free to PM me if you have specific questions or what to discuss anything in greater detail. Thank you for notifying us that this information is no longer valid.
I would be willing to host a Northern Colorado Narcolepsy Support Group. Anything in particular I need to do?
#6
axe
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- Location:North East Ohio
Posted 20 March 2011 - 01:43 PM
Hi Grace,
If you are a member of Narcolepsy Network (NN), and not just a member of this Forum, you can ask Joyce at the NN office for a list of other NN members in your State. Also if you are trying to start your own Support Group, e-mail Sarah DiDavide (She Chairs the NN Support Group Committee) and ask for assistance. Both can be done from the NN main website.
Axe
If you are a member of Narcolepsy Network (NN), and not just a member of this Forum, you can ask Joyce at the NN office for a list of other NN members in your State. Also if you are trying to start your own Support Group, e-mail Sarah DiDavide (She Chairs the NN Support Group Committee) and ask for assistance. Both can be done from the NN main website.
Axe
#8
MCP
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- Location:Georgia & Colorado
Posted 06 September 2012 - 10:27 AM
Hey Sunshine!
I am from GA but am making the move to CO as soon as I get a job out there. I am licensed in CO as a pharmacist, but it has been difficult getting a job without knowing anyone. I am flying out there this Saturday and will be there for one week to hopefully make some better progress. Do you know if there has been any development as far as forming a Narcolepsy Network group in Colorado? If so, please let me know! This is definitely something I will be interested in!! Also, if you know anyone looking for an enthusiastic & passionate pharmacist, let me know!
Narcolepsy has definitely made life more difficult these past few years, but I do not want to give up on my dreams!!
~MCP
I am from GA but am making the move to CO as soon as I get a job out there. I am licensed in CO as a pharmacist, but it has been difficult getting a job without knowing anyone. I am flying out there this Saturday and will be there for one week to hopefully make some better progress. Do you know if there has been any development as far as forming a Narcolepsy Network group in Colorado? If so, please let me know! This is definitely something I will be interested in!! Also, if you know anyone looking for an enthusiastic & passionate pharmacist, let me know!
Narcolepsy has definitely made life more difficult these past few years, but I do not want to give up on my dreams!!~MCP
#9
MCP
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- Location:Georgia & Colorado
Posted 06 September 2012 - 10:29 AM
I would be willing to host a Northern Colorado Narcolepsy Support Group. Anything in particular I need to do?
Hey SubtleGrace!
I am from GA but am making the move to CO as soon as I get a job out there. I am licensed in CO as a pharmacist, but it has been difficult getting a job without knowing anyone. I am flying out there this Saturday and will be there for one week to hopefully make some better progress. Do you know if there has been any development as far as forming a Narcolepsy Network group in Colorado? If so, please let me know! This is definitely something I will be interested in!! Also, if you know anyone looking for an enthusiastic & passionate pharmacist, let me know!
Narcolepsy has definitely made life more difficult these past few years, but I do not want to give up on my dreams!!~MCP
#10
MCP
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- Location:Georgia & Colorado
Posted 06 September 2012 - 10:30 AM
We just moved to Parker and are interested in a support group for Narcoleptics. Our 8 year old son was just diagnosed and we are struggling to find medications, doctors, and general support.
Thanks!
Hey Nikki!
I am from GA but am making the move to CO as soon as I get a job out there. I am licensed in CO as a pharmacist, but it has been difficult getting a job without knowing anyone. I am flying out there this Saturday and will be there for one week to hopefully make some better progress. Do you know if there has been any development as far as forming a Narcolepsy Network group in Colorado? If so, please let me know! This is definitely something I will be interested in!! Also, if you know anyone looking for an enthusiastic & passionate pharmacist, let me know!
Narcolepsy has definitely made life more difficult these past few years, but I do not want to give up on my dreams!!~MCP
#11
Guest_sdomarski_*
Guest_sdomarski_*
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Posted 29 November 2012 - 12:49 AM
Hey Nikki!
I am from GA but am making the move to CO as soon as I get a job out there. I am licensed in CO as a pharmacist, but it has been difficult getting a job without knowing anyone. I am flying out there this Saturday and will be there for one week to hopefully make some better progress. Do you know if there has been any development as far as forming a Narcolepsy Network group in Colorado? If so, please let me know! This is definitely something I will be interested in!! Also, if you know anyone looking for an enthusiastic & passionate pharmacist, let me know!
~MCP
#12
Guest_sunshine_*
Guest_sunshine_*
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Posted 29 November 2012 - 12:49 AM
Hey Nikki!
I am from GA but am making the move to CO as soon as I get a job out there. I am licensed in CO as a pharmacist, but it has been difficult getting a job without knowing anyone. I am flying out there this Saturday and will be there for one week to hopefully make some better progress. Do you know if there has been any development as far as forming a Narcolepsy Network group in Colorado? If so, please let me know! This is definitely something I will be interested in!! Also, if you know anyone looking for an enthusiastic & passionate pharmacist, let me know!
~MCP
#13
Guest_sunshine_*
Guest_sunshine_*
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Posted 29 November 2012 - 12:55 AM
Hey Nikki!
I am from GA but am making the move to CO as soon as I get a job out there. I am licensed in CO as a pharmacist, but it has been difficult getting a job without knowing anyone. I am flying out there this Saturday and will be there for one week to hopefully make some better progress. Do you know if there has been any development as far as forming a Narcolepsy Network group in Colorado? If so, please let me know! This is definitely something I will be interested in!! Also, if you know anyone looking for an enthusiastic & passionate pharmacist, let me know!
~MCP
#14
Guest_sunshine_*
Guest_sunshine_*
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Posted 29 November 2012 - 12:55 AM
Hey MCP.
I haven't been on here in...years I think. Anyway, I'm still in Denver. I don't know a thing about support groups here. NN avoids Denver for conferences like the plague as far as I can tell. I guess they think that since there are so many athletes, there must not be anyone with narcolepsy. Did you know that Denver is home to one of the highest number of MS patients....I think it's because there is so much research for it here. But, being that it's related to narcolepsy via the same MHC-2 genetic allele, and it's autoimmune....and many of them tend to have narcolepsy-like syndromes....you'd think we have something. Nope. Denver is a "hush don't talk about bad stuff" kind of town. So we get ignored all around. You can email me at soprano2d. That's at hotmail.com.
Cheers!
I haven't been on here in...years I think. Anyway, I'm still in Denver. I don't know a thing about support groups here. NN avoids Denver for conferences like the plague as far as I can tell. I guess they think that since there are so many athletes, there must not be anyone with narcolepsy. Did you know that Denver is home to one of the highest number of MS patients....I think it's because there is so much research for it here. But, being that it's related to narcolepsy via the same MHC-2 genetic allele, and it's autoimmune....and many of them tend to have narcolepsy-like syndromes....you'd think we have something. Nope. Denver is a "hush don't talk about bad stuff" kind of town. So we get ignored all around. You can email me at soprano2d. That's at hotmail.com.
Cheers!
#16
Guest_Krystin_*
Guest_Krystin_*
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Posted 29 April 2013 - 12:33 AM
I'd like to start a support group in Colorado. Anyone in? I was in a support group in San Diego and it was so wonderful I miss the experience.
Sometime soon I'll actually fill out the paperwork to become a member and contact NN.org people for information. I live in Frederick but will try to find a central location for everyone.
If you're interested and have ideas please let me know: krystin.corby@gmail.com
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